CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 16387
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C19247 Subject ID

Subject identification ID

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C21117 Subject name

Name of subject/participant

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54331 Acute Concussion Evaluation (ACE) - Person obtaining report type

The type indicating who the report was obtained by, as part of the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54332 Person obtaining report other text

Text specifying another means of obtaining the report

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54333 Acute Concussion Evaluation (ACE) ? Injury description text

Text of injury description as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54334 Acute Concussion Evaluation (ACE) - Evidence direct blow head indicator

Indicator whether injury is due to a blow to the head as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54335 Acute Concussion Evaluation (ACE) - Evidence intracranial injury skull fracture indicator

Indicator whether injury is due to an intracranial skull fracture as related to f the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54336 Acute Concussion Evaluation (ACE) - Impact location anatomic site

Anatomic site of impact injury as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54337 Acute Concussion Evaluation (ACE) - Injury cause type

Type of injury cause as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54338 Acute Concussion Evaluation (ACE) - Injury cause type sports text

Text specifying the cause of the impact injury as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54339 Acute Concussion Evaluation (ACE) - Injury cause type other text

Text specifying another cause of the impact injury as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54340 Acute Concussion Evaluation (ACE) - Amnesia before no memory events indicator

Indicator of whether subject/participant had no memory of events before (retrograde) amnesia as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54341 Acute Concussion Evaluation (ACE) - Amnesia before no memory events duration

Duration of subject's/participant's length of amnesia before injury as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54342 Acute Concussion Evaluation (ACE) - Amnesia after no memory events indicator

Indicator of whether subject/participant had no memory of events after (anterograde) amnesia as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54343 Acute Concussion Evaluation (ACE) - Amnesia after no memory events duration

Duration of subject's/participant's length of amnesia after (anterograde) injury as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54344 Acute Concussion Evaluation (ACE) - Loss of consciousness indicator

Indicator of whether subject/participant had loss of consciousness as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54345 Acute Concussion Evaluation (ACE) - Loss of consciousness duration

Duration of the subject/participant's loss of consciousness as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54346 Acute Concussion Evaluation (ACE) - Early signs type

Type of early signs that may have been observed after subject/patient injury as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54347 Acute Concussion Evaluation (ACE) - Seizure indicator

Indicator of whether subject/participant had seizures as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54348 Acute Concussion Evaluation (ACE) - Seizure detail text

Text describing subject/participant seizures as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
C54349 Acute Concussion Evaluation (ACE) - Symptom check list type

Type of symptoms subject/participant has experienced since injury as related to the Acute Concussion Evaluation (ACE)

Supplemental Acute Concussion Evaluation (ACE) Sport-Related Concussion Comprehensive
Displaying 1 - 25 of 16387

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.