CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 16387
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08530 36-item Short Form Health Survey (SF-36) - Times happy score

Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Sport-Related Concussion Subacute
C08532 36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score

Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Sport-Related Concussion Subacute
C08524 36-item Short Form Health Survey (SF-36) - Times nervous score

Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Sport-Related Concussion Subacute
C08523 36-item Short Form Health Survey (SF-36) - Times pep score

Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Sport-Related Concussion Subacute
C08531 36-item Short Form Health Survey (SF-36) - Times tired score

Score of times feeling tired during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Sport-Related Concussion Subacute
C08529 36-item Short Form Health Survey (SF-36) - Times worn out score

Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Sport-Related Concussion Subacute
C08519 36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator

Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Sport-Related Concussion Subacute
C55804 Academic accommodations duration

Duration of the academic accommodation(s) used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Comprehensive
C55804 Academic accommodations duration

Duration of the academic accommodation(s) used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Acute
C55804 Academic accommodations duration

Duration of the academic accommodation(s) used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Persistent/Chronic
C55804 Academic accommodations duration

Duration of the academic accommodation(s) used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Subacute
C55803 Academic accommodations indicator

Indicator related to the academic accommodation(s) used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Comprehensive
C55803 Academic accommodations indicator

Indicator related to the academic accommodation(s) used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Acute
C55803 Academic accommodations indicator

Indicator related to the academic accommodation(s) used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Persistent/Chronic
C55803 Academic accommodations indicator

Indicator related to the academic accommodation(s) used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Subacute
C55805 Academic accommodations start time

Start time/date that the patient began using academic accommodations

 Supplemental Treatments and Interventions False Sport-Related Concussion Comprehensive
C55805 Academic accommodations start time

Start time/date that the patient began using academic accommodations

 Supplemental Treatments and Interventions False Sport-Related Concussion Acute
C55805 Academic accommodations start time

Start time/date that the patient began using academic accommodations

 Supplemental Treatments and Interventions False Sport-Related Concussion Persistent/Chronic
C55805 Academic accommodations start time

Start time/date that the patient began using academic accommodations

 Supplemental Treatments and Interventions False Sport-Related Concussion Subacute
C55806 Academic accommodations text

Type of academic accommodations used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Comprehensive
C55806 Academic accommodations text

Type of academic accommodations used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Acute
C55806 Academic accommodations text

Type of academic accommodations used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Persistent/Chronic
C55806 Academic accommodations text

Type of academic accommodations used by the patient

 Supplemental Treatments and Interventions False Sport-Related Concussion Subacute
C55561 Academic achievement average USA category

Category describing the average academic achievement of the subject/participant in relation to the typical academic achievement scale used in the USA

 Supplemental Injury Report False Sport-Related Concussion Comprehensive
C55561 Academic achievement average USA category

Category describing the average academic achievement of the subject/participant in relation to the typical academic achievement scale used in the USA

 Supplemental Injury Report False Sport-Related Concussion Acute
Displaying 51 - 75 of 16387

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.