CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1051 - 1075 of 1146

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1987-C17898	C17898	Laboratory director unknown indicator	Indicator of unknown laboratory director	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C17899	C17899	Preservation technique not used indicator	Indicates preservation technique used is not known	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C17901	C17901	Elevated creatine kinase Indicator	Indicator of whether participant/subject experienced elevated creatine kinase levels	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C17902	C17902	Elevated creatine kinase value	The elevated creatine kinase value	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C17903	C17903	Biopsy and autopsy abnormalities on immunohistochemistry text	Text regarding abnormalities on immunohistochemistry	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C17904	C17904	Biopsy and autopsy pathological inclusions text	Text describing pathological inclusions (if any)	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C17905	C17905	Biopsy and autopsy abnormal storage material text	Text describing biopsy or autopsy material that has been stored abnormally	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Core	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12690	C12690	Gene name	Name of the gene analyzed	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12782	C12782	Gene additional variants unknown significance indicator	Indicator of whether there are additional variants in other genes of unknown significance	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12783	C12783	Variant mutational analysis results available indicator	Indicator of whether the variant or mutational analysis results are available on this participant	Core	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12784	C12784	Variant mutational analysis performed family member indicator	Indicator of whether the mutational analysis was performed on a family member	Core	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Core	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12786	C12786	Allele identifier name	Name that identifies which allele the associated data describe	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12787	C12787	Gene variant mutation category	Category of the variant or mutation detected on the gene	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12788	C12788	Gene exon copy number tested indicator	Indicator of whether the copy number was directly tested for all exons	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12789	C12789	Gene deletions duplications limits clearly defined indicator	Indicator of whether the limits of deletions and duplications are defined	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12790	C12790	Gene exon first deleted duplicated name	Name of the first exon deleted or duplicated	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12791	C12791	Gene exon last deleted duplicated name	Name of the exon last deleted or duplicated	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12792	C12792	Gene whole deletion indicator	Whether the entire gene was deleted	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12793	C12793	Gene exon predicted reading frame type	Type of predicted reading frame	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12794	C12794	Gene promoter deletion indicator	Whether known gene promoters were deleted	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12795	C12795	Gene coding region sequenced indicator	Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12796	C12796	Gene targeted variant mutational analysis indicator	Indicator of whether variant or mutational analysis was targeted at a particular variant or mutation	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

Displaying 1051 - 1075 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.