CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0826-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06006	C06006	SCI Classification sensory neurological level left result	Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06006	C06006	SCI Classification sensory neurological level left result	Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06007	C06007	SCI Classification sensory neurological level right result	Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06007	C06007	SCI Classification sensory neurological level right result	Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06008	C06008	SCI Classification motor neurological level left result	Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06008	C06008	SCI Classification motor neurological level left result	Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06009	C06009	SCI Classification motor neurological level right result	Result of the lowest key muscle on the right side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06009	C06009	SCI Classification motor neurological level right result	Result of the lowest key muscle on the right side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06010	C06010	ASIA Impairment Scale	Scale for the participant's/subject's impairment level on The American Spinal Injury Association (ASIA) Impairment Scale classification, which attempts to quantitate the degree of impairment	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06010	C06010	ASIA Impairment Scale	Scale for the participant's/subject's impairment level on The American Spinal Injury Association (ASIA) Impairment Scale classification, which attempts to quantitate the degree of impairment	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06320	C06320	SCI Classification motor strength upper limb total score	Total score of motor strength for the upper right and left limbs	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06320	C06320	SCI Classification motor strength upper limb total score	Total score of motor strength for the upper right and left limbs	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06322	C06322	SCI Classification sensory zone of partial preservation right result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the right side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06322	C06322	SCI Classification sensory zone of partial preservation right result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of sensory function on the right side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06323	C06323	SCI Classification motor zone of partial preservation right result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the right side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06323	C06323	SCI Classification motor zone of partial preservation right result	Result of the caudal extent of partially innervated segments, demonstrating partial preservation of motor function on the right side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06324	C06324	SCI Classification motor exam anatomic site	Muscle (and associated spinal cord level) evaluated during the motor examination	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06324	C06324	SCI Classification motor exam anatomic site	Muscle (and associated spinal cord level) evaluated during the motor examination	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06325	C06325	SCI Classification light touch anatomic site grade	Grade that documents the ability to sense light touch on the specific spinal cord level and side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06325	C06325	SCI Classification light touch anatomic site grade	Grade that documents the ability to sense light touch on the specific spinal cord level and side	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06326	C06326	SCI Classification sensory exam anatomic site	Spinal cord level evaluated during the sensory examination	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06326	C06326	SCI Classification sensory exam anatomic site	Spinal cord level evaluated during the sensory examination	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.