CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1801 - 1825 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17232 Swallowing Disturbance Questionnaire (SwDQ) - difficulty swallow solid food score

Score for how frequent the participant/subject experiences difficulty in swallowing solid foods (i.e. do apples or crackers get stuck in your throat), as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C17233 Swallowing Disturbance Questionnaire (SwDQ) - difficulty swallow puree food score

Score for how frequent the participant/subject experiences difficulty swallowing pureed food, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C17234 Swallowing Disturbance Questionnaire (SwDQ) - lump food stuck throat meal score

Score for how frequent the participant/subject feels as if a lump of food is stuck in the throat while eating, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C17235 Swallowing Disturbance Questionnaire (SwDQ) - cough swallow liquid score

Score for how frequent the participant/subject coughs while swallowing liquids, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C17236 Swallowing Disturbance Questionnaire (SwDQ) - cough swallow solid food score

Score for how frequent the participant/subject coughs while swallowing solid foods, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C17237 Swallowing Disturbance Questionnaire (SwDQ) - change voice after eat score

Score for how frequent the participant/subject experiences a change in voice, such as hoarseness or reduced, immediately after eating or drinking, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C17238 Swallowing Disturbance Questionnaire (SwDQ) - cough difficulty breathe saliva windpipe score

Score for how frequent the participant/subject experiences coughing or difficulty breathing as a result of saliva entering the windpipe, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C17239 Swallowing Disturbance Questionnaire (SwDQ) - difficulty breathe meal score

Score for how frequent the participant/subject experiences difficulty breathing during meals, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C17240 Swallowing Disturbance Questionnaire (SwDQ) - suffer respiratory infection past year indicator

Indicator for whether the participant/subject has suffered from a respiratory infection in the past year, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C11907 Modified Ashworth Scale for Grading Spasticity muscle tested name

Name of Muscle Tested

 Exploratory Modified Ashworth Scale for Grading Spasticity (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C11908 Modified Ashworth Scale for Grading Spasticity muscle score

Measurement of muscle spasticity

 Exploratory Modified Ashworth Scale for Grading Spasticity (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C13205 Generalized Anxiety Disorder (GAD-7) - feeling nervous scale

Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C13206 Generalized Anxiety Disorder (GAD-7) - not stop worry scale

Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C13209 Generalized Anxiety Disorder (GAD-7) - restless scale

Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C13212 Generalized Anxiety Disorder (GAD-7) - total score

Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C14641 Functional Disability Inventory (FDI) - child form walk bathroom scale

The scale of the child's or adolescent's ability to walk to the bathroom when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
C14642 Functional Disability Inventory (FDI) - child form walk stair scale

The scale of the child's or adolescent's ability to walk up the stairs when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
C14643 Functional Disability Inventory (FDI) - child form friend activity scale

The scale of the child's or adolescent's ability to engage with a friend when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
C14644 Functional Disability Inventory (FDI) - child form chore scale

The scale of the child's or adolescent's ability to perform and complete chores at home when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
C14645 Functional Disability Inventory (FDI) - child form eat meal scale

The scale of the child's or adolescent's ability to eat regular meals when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
C14646 Functional Disability Inventory (FDI) - child form up all day scale

The scale of the child's or adolescent's ability to stay awake all day without taking a nap or rest when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
Displaying 1801 - 1825 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.