CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1888
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02300 Adverse event study intervention action take type

Type of action taken for adverse event in relation to study intervention

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02301 Adverse event end date and time

Date (and time, if applicable and known) on which the adverse event discontinued/stopped

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02302 Adverse event other action take type

Type of action taken due to adverse event other than action taken with study intervention/ treatment

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02303 Adverse event outcome status

Final status of the participant related to the adverse event

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02304 Adverse event study intervention relatedness investigator assessment grade

Grade of the causality between the treatment modality/intervention and the specific adverse event

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02306 Adverse event start date and time

Date (and time, if applicable and known) on which the adverse event was first evident

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02307 Adverse event verbatim term text

The free-text field that describes the adverse event word for word as described by the participant

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02308 Adverse event during study indicator

Indicator of whether the participant experienced any adverse events during the study

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02309 Serious adverse event indicator

Indicator of whether the adverse event is serious

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02310 Adverse event CTCAE term name

Name that represents the Common Terminology Criteria for Adverse Events (CTCAE) term for an adverse event

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C02311 Adverse event MedDRA lowest level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lowest Level Term (LLT) for an adverse event

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C18659 Unexpected adverse event indicator

Indicator of whether the adverse event is unexpected

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C22702 Institutional review board notification indicator

Indicator of whether the Institutional Review Board (IRB) was notified following an adverse event

 Supplemental Adverse Events 0 Spinal Cord Injury Spinal Cord Injury
C07442 Satisfaction with Life Scale (SWLS) - Life close ideal score

Score of closeness between the subject's life and the ideal life, as part of the Satisfaction with Life Scale (SWLS)

 Supplemental Satisfaction with Life Scale False Spinal Cord Injury Spinal Cord Injury
C07443 Satisfaction with Life Scale (SWLS) - Life condition excellence score

Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS)

 Supplemental Satisfaction with Life Scale False Spinal Cord Injury Spinal Cord Injury
C07444 Satisfaction with Life Scale (SWLS) - Life satisfaction score

Score of subject's satisfaction with life, as part of the Satisfaction with Life Scale (SWLS)

 Supplemental Satisfaction with Life Scale False Spinal Cord Injury Spinal Cord Injury
C07445 Satisfaction with Life Scale (SWLS) - Life achievement score

Score of subject's achievement in life, as part of the Satisfaction with Life Scale (SWLS)

 Supplemental Satisfaction with Life Scale False Spinal Cord Injury Spinal Cord Injury
C07446 Satisfaction with Life Scale (SWLS) - Life change score

Score of subject's wish to change anything, as part of the Satisfaction with Life Scale (SWLS)

 Supplemental Satisfaction with Life Scale False Spinal Cord Injury Spinal Cord Injury
C07447 Satisfaction with Life Scale (SWLS )- Total score

Total sum of the responses to the five items (5-35), as part of the Satisfaction with Life Scale (SWLS)

 Supplemental Satisfaction with Life Scale False Spinal Cord Injury Spinal Cord Injury
C07080 Alcohol Use Disorders Identification Test (AUDIT) - Drink contain alcohol frequency score

Score for the frequency with which the subject consumes alcoholic drinks, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C07081 Alcohol Use Disorders Identification Test (AUDIT) - Alcohol drink typical day number score

Score for the number of drinks the subject consumes on a day he or she is drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C07082 Alcohol Use Disorders Identification Test (AUDIT) - More than 6 alcohol drink frequency score

Score for the frequency with which the subject consumes six or more alcoholic drinks on a single occasion, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C07083 Alcohol Use Disorders Identification Test (AUDIT) - Cannot stop drink alcohol frequency score

Score for the frequency within the last year with which the subject found himself or herself unable to stop drinking once he or she started, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C07084 Alcohol Use Disorders Identification Test (AUDIT) - Fail normal activity drink frequency score

The frequency with which the subject found himself or herself unable to perform normal tasks due to drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C07085 Alcohol Use Disorders Identification Test (AUDIT) - Morning drink after frequency score

The frequency with which the subject found himself or herself in need of an alcoholic drink in the morning due to a heavy drinking session the night before, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
Displaying 1 - 25 of 1888

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.