CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1984-C12239	C12239	Electron microscopy performed indicator	Indicator of whether electron microscopy was performed	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C17878	C17878	Polysomnography limited type text	Text description of the polysomnography being reported if it is not a full polysomnography	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12746	C12746	Electrophysiology fiber density quantitative result value	Fiber density measured for a particular muscle and side	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1998-C01703	C01703	Lab panel category	Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12891	C12891	Echocardiogram right ventricle function status	Status of right ventricle function on the echocardiogram	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12198	C12198	Gastrointestinal therapy received indicator	Indicator of whether the participant/subject is currently receiving any gastrointestinal (GI) therapies	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12705	C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12295	C12295	Laboratory pathology normal range age match indicator	Indicator of whether the pathology laboratory's normal range of intraepidermal nerve fiber density is age-matched to the patient from whom the tissue specimen was taken	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C18837	C18837	Respiratory manual cough assist use other text	The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C11083	C11083	Delivery extraction type	Type of extraction used to assist with the delivery of the participant/subject	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1040-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1056-C17928	C17928	Cardiac MRI myocardial scar anatomic site	Anatomic site where myocardial scar was/was not detected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12498	C12498	Imaging T2 white matter status	Status related to whether the white matter appears normal or abnormal on T2 weighted images	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12439	C12439	Polysomnography blood oxygen saturation distribution percent value	The value of the blood oxygen saturation (SpO2) percentage for which sleep distribution results are being reported	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C12538	C12538	Imaging fast indicator	Indicator of whether or not fast imaging was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12899	C12899	Echocardiogram right ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12207	C12207	Gastrointestinal therapy take nutrition supplement indicator	Indicator whether the participant/subject is taking nutritional supplements	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12714	C12714	Electrophysiology blink reflex test contralateral R2 latency value	Duration of contralateral R2 latency in the blink reflex test	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12791	C12791	Gene exon last deleted duplicated name	Name of the exon last deleted or duplicated	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C18845	C18845	Respiratory intrapulmonary percussive ventilation cup liquid other text	The free-text field related to 'Respiratory intrapulmonary percussive ventilation cup liquid type' specifying other text. Type of liquid in the intrapulmonary percussive ventilation cup	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C12628	C12628	Neonatal intensive care unit stay indicator	Indicator whether the participant/subject had to stay in the neonatal intensive care unit (NICU)	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C12830	C12830	ECG conduction block status	Status of a conduction block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.