CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1071-C12686	C12686	Orthosis type use indicator	Indicator whether the participant/subject currently uses the selected types of orthosis	Supplemental	External Devices - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12513	C12513	Dual X-ray absorptiometry distal forearm raw score	The score for the dual X-ray absorptiometry (DEXA) of the distal forearm	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12889	C12889	Echocardiogram right ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12207	C12207	Gastrointestinal therapy take nutrition supplement indicator	Indicator whether the participant/subject is taking nutritional supplements	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12487	C12487	Imaging other cortical abnormality site type	The anatomical site(s) of the other cortical abnormality	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12389	C12389	Respiratory ventilation mode assist control type	Type of assist control ventilation used	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C18610	C18610	Imaging in plane resolution axis 2 measurement	Axis 2 of in-plane spatial resolution used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C18845	C18845	Respiratory intrapulmonary percussive ventilation cup liquid other text	The free-text field related to 'Respiratory intrapulmonary percussive ventilation cup liquid type' specifying other text. Type of liquid in the intrapulmonary percussive ventilation cup	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12347	C12347	Respiratory high frequency chest wall oscillation system brand name	Name of the brand of thee high frequency chest wall oscillation system brand of device used	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12245	C12245	Symptom presentation type	Symptoms participant/ subject shows at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1072-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F2012-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Grip Strength	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12897	C12897	Echocardiogram right ventricle end diastolic volume measurement	Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C12231	C12231	Laboratory name	Name of laboratory where assessment was performed	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12217	C12217	Gastrointestinal therapy continuous feed formula rate	Rate, in mL/hr, at which the participant/subject receives formula if receiving continuous feeding	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12495	C12495	Imaging pons abnormality type	The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12750	C12750	Electrophysiology motor unit number estimation surface motor unit action potential average count	Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12397	C12397	Respiratory support use frequency	Frequency of ventilation device use	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C18714	C18714	Imaging radio frequency coil channel count other text	The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C19736	C19736	Respiration intervention invasive tracheostomy tube indicator	Indicator of invasive respiratory support including a tracheostomy tube	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12355	C12355	Respiratory intrapulmonary percussive ventilation or MetaNeb daily detail type	Frequency of use of the intrapulmonary percussive ventilation or MetaNeb device on a daily basis	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C17877	C17877	Polysomnography end time clock type	Type of clock used to record the time at which the sleep study ended	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12255	C12255	Biopsy and autopsy central nuclei estimated fibers percent value	Estimated percent of fibers in central nuclei	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.