CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12398 Respiratory support schedule daily hour value

Value of the number of hours of daily ventilation device use

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12267 Biopsy and autopsy liver biopsy autopsy results

The results of the liver biopsy

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10609 Hospitalization reason

Reason why the participant/subject was hospitalized, excluding all surgeries

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17963 Cardiovascular mitral valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17906 Specimen immunohistochemical stain use indicator

Indicator whether immunohistochemcial stains were used on the tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12771 Electrophysiology long exercise test post-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise for the long exercise test

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12187 Dual X-ray absorptiometry distal femur T score

Dual X-ray absorptiometry (DEXA) distal femur T score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12866 Echocardiogram left atrial area measurement

Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12423 Pulmonary gas exchange end tidal transcutaneous carbon dioxide above 50 mmHg value

The percent of time the participant/subject's ETCO2 or transcutaneous CO2 (TCCO2) pressure is above 50 mmHg

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12475 Imaging magnetic resonance imaging T1 T2 sequence name

The name of the T1 or T2 sequences used for Magnetic Resonance Imaging (MRI)

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10691 Imaging spatially registered template indicator

Indicator as to whether or not imaging is spatially registered to a template for data analysis

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12430 Polysomnography sleep total duration

Duration for which the participant/subject was asleep during the sleep study

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17880 Respiratory support ventilation device other model name

Name of other support ventilation device used by the participant/subject

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12275 Biopsy and autopsy absent immunoreactivity assay name

Absent immunoreactivity

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18765 Surgical or therapeutic procedure other text

The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18854 Imaging other incidental finding other text

The free-text field related to 'Imaging other incidental finding type' specifying other text. The type of other incidental findings found within the image studies

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12682 Orthosis use indicator

Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

 Supplemental External Devices - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12195 Dual X-ray absorptiometry left arm lean value

Left arm lean muscle mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12203 Gastrointestinal therapy fundoplication date

Date on which the participant/subject had fundoplication surgery

 Supplemental Gastrointestinal Therapies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12483 Imaging cortex-polymicrogyria indicator

Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12438 Polysomnography blood oxygen saturation mean awake measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) while the participant/subject was awake, from the polysomnography being reported

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 301 - 325 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.