CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 351 - 375 of 1146
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12609 Education level paternal USA type

Indicator of the highest level of education completed by the participant/subject's father

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12242 Biochemical or genetic test result value

Results of the biochemical or genetic test performed on the specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12265 Biopsy and autopsy diagnostic abnormalities severity grade

Severity of the diagnostic muscle abnormalities

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C06025 Surgical or therapeutic procedure performed indicator

Indicator whether the participant/subject has undergone the selected surgical procedure

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12681 Hospitalization non-surgical ventilation indicator

Indicator of whether the participant/subject was ventilated while in the hospital for the specified non-surgical reason

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12673 Position device use indicator

Indicator of whether the participant/subject uses any positioning devices

 Supplemental External Devices - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core Demographics False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17411 Gestational age weeks delivery duration

Duration of gestation (gestational age or GA) at the time of the participant/subject's delivery

 Supplemental NINDS Repository Spinal Muscular Atrophy Data Elements False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12530 Biopsy autopsy COX-negative fibers estimated count

COX-negative fibers estimated number

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12658 Clinical event or milestone achieved age value

Age when the participant/subject achieved the clinical event or milestone

 Core Motor Milestones and Current Level of Function - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11066 Pregnancy or delivery risk factor type

Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10942 Imaging voxel anatomic site

The anatomic site in which the voxel is located (e.g., brain left frontal white matter)

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01706 Lab test result text

Result of the laboratory test

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12615 Delivery or pregnancy termination maternal last date and time

Date and time (if applicable and known) of the participant's/subject's mother's last delivery, miscarriage or medical termination

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10963 Imaging B0-susceptibility distortion correction indicator

Indicator as to whether image post-processing has included co-registering to T2-weighted image(s) for B0-susceptibility distortion correction

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Core Physical Examination False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17983 Caesarean delivery timing type

Type of timing conditions under which Caesarean delivery was decided upon

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Core Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

 Core Electrocardiogram (ECG) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12943 Orthosis type

Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

 Supplemental External Devices - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00215 Living with person relationship type

Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12754 Electrophysiology mean circular result

The mean circular result (MCR) measured during autonomic function testing

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12635 Spinal muscular atrophy symptom joint type anatomic site

Anatomic site of the selected type of joint-related spinal muscular atrophy (SMA) symptom or sign exhibited by the participant/subject

 Supplemental Medical History of SMA - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 351 - 375 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.