CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1093-C12604	C12604	APGAR one minute score	Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1056-C12843	C12843	Cardiac MRI ventricle end systolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C12834	C12834	ECG bundle branch block incomplete status	Status of incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12396	C12396	Respiratory supplemental oxygen value	Value of the flow rate of supplemental oxygen	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C10959	C10959	Spectroscopy spectral bandwidth value	Spectral bandwidth, in Hertz per pixel, used for both metabolite and water signal reference data acquisitions	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C10585	C10585	Imaging phase partial Fourier indicator	Indicator of whether phase partial Fourier was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12354	C12354	Respiratory intrapulmonary percussive ventilation or MetaNeb frequency	Frequency of intrapulmonary percussive ventilation or MetaNeb use	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C18826	C18826	Gastrointestinal therapy feed tube other text	The free-text field related to 'Gastrointestinal therapy feed tube type' specifying other text. Type of tube through which the participant/subject receives therapeutic tube feedings	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12184	C12184	Dual X-ray absorptiometry proximal femur T score	Dual X-ray absorptiometry (DEXA) proximal femur T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12863	C12863	Echocardiogram left atrium view type	Type of view of the left atrium on the echocardiogram	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1038-C12420	C12420	Pulmonary gas exchange oxygen saturation less 90 percent value	The percent of time the participant/subject's oxygen saturation level (SpO2) is less then 90 percent while the participant/subject is sleeping	Supplemental	Measures of Gas Exchange	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12468	C12468	Imaging brain magnetic resonance imaging perform multiple count type	Type of count for the number of brain magnetic resonance imaging (MRI) sessions performed on the participant	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C10683	C10683	Imaging T2 weighted spin-echo acquired indicator	Indicator as to whether or not T2-weighted spin-echo data acquired for spatially registering DWI data and performing spatial distortion (B0) correction	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12427	C12427	Polysomnography study start time	Time at which the sleep study began	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12403	C12403	Respiratory oxygen use schedule type	Type of schedule of supplemental oxygen use	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12272	C12272	Western Blot result	Result of the assay(s) performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1075-C12680	C12680	Hospitalization non-surgical elective indicator	Indicator of whether the enumerated non-surgical hospitalization was elective	Supplemental	Surgical and Hospitalization History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C54234	C54234	Echocardiogram right interventricular septal thickness end diastole measurement	Measurement of right ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C18719	C18719	Imaging slice orientation type other text	The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C18871	C18871	Needle electromyography spontaneous activity other text	The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12192	C12192	Dual X-ray absorptiometry whole body bone mineral density value	The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12871	C12871	Echocardiogram aortic valve stenosis degree status	Status of the degree of aortic valve stenosis as assessed by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12199	C12199	Gastrointestinal therapy feed method type	Type of method by which the participant/subject receives therapeutic feedings	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12480	C12480	Imaging cortex-pachygyria thickness measurement	The measurement of cortex thickness, in , of the cortex	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.