CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1751 - 1775 of 1886

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0818-C06010	C06010	ASIA Impairment Scale	Scale for the participant's/subject's impairment level on The American Spinal Injury Association (ASIA) Impairment Scale classification, which attempts to quantitate the degree of impairment	Supplemental	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C18147	C18147	Laboratory procedure LDL cholesterol measurement	Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22842	C22842	Pain current treatment side effect adverse event text	Free-text field to specify side effects or adverse events the participant is currently receiving	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14643	C14643	Functional Disability Inventory (FDI) - child form friend activity scale	The scale of the child's or adolescent's ability to engage with a friend when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F0009-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22802	C22802	Pain worst intensity past week scale	Scale for the worst pain intensity in the past week	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21643	C21643	Fall details specify type	Description of what the participant/subject was doing when the fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21626	C21626	Hospital transport board cut-out indicator	Indicates whether the hospital transport board was modified with a cut-out	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C19256	C19256	Study protocol name	Name of study protocol	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F1719-C19097	C19097	Scoliosis surgical treatment indicator	Indicator for surgical treatment of scoliosis	Supplemental	Surgical and Procedural Interventions	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C06263	C06263	Bladder function detrusor maximum pressure value	Value of the maximum detrusor pressure on the participant/subject during filling cystometry	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C19243	C19243	Sensory latency value	The value of latency in sensory response	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C05108	C05108	Surgical or therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C19342	C19342	Measurement not reported reason	The reason that a value was not reported for a measurement	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C06190	C06190	Defecation past four week average duration range	Range for the average time required for each defecation within the last four weeks. The time given is from first transferring to the toilet or commode until end of defecation and transfer to wheel chair or moving from the toilet. If bladder emptying, body washing, shaving etc is also performed while sitting at the toilet time for this is subtracted. For individuals performing bowel management while lying in the bed time required is from beginning to end of bowel management not including time for bladder management, body washing etc	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14651	C14651	Functional Disability Inventory (FDI) - child form watch TV scale	The scale of the child's or adolescent's ability to watch television when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F0009-C22703	C22703	Serious adverse event form completion indicator	Indicator of whether the Serious Adverse Event (SAE) form was completed following an adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22810	C22810	Injury below level dynamic light touch response type	The type of response related to dynamic light touch below the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2070-C12688	C12688	Orthosis knee ankle foot orthosis ischial weight bearing indicator	Indicator whether any knee-ankle-foot orthosis (KAFO) currently used by the participant/subject is ischial weight bearing	Supplemental	Assistive/Mobility Devices and Orthoses	False	Spinal Cord Injury	Spinal Cord Injury
F1795-C19403	C19403	Brain Motor Control Assessment (BMCA) - Test type	Type of protocol testing as part of the Brain Motor Control Assessment (BMCA)	Supplemental	Brain Motor Control Assessment	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06192	C06192	Fecal incontinence past three month average frequency	Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 1751 - 1775 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.