CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1676 - 1700 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17396 Sex genotype type

The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C18118 Clearance date

Clearance date

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C58649 Quantitative sensory testing decrease stimulation rate unit of measure

The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C06261 Bladder function urethral function type

Type of urethral function of the participant/subject during voiding

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C19159 Care provision level

The level of care provided to participant by health care facility

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C06360 Endocrine metabolic history after spinal cord lesion last year text

Endocrine and metabolic complications or conditions that may have occurred after the spinal cord lesion and within the last year

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06059 Pain location anatomic site

Anatomic site on the body where the pain is experienced

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C19482 Paid work hour week count

The number of hours per week in paid work

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22829 Pain past treatment relaxation psychotherapy type

The type of past relaxation and psychotherapy treatment the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19128 Facility arrival date

Date when patient arrived at facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C06107 Tobacco pipe bowl smoke daily average value

If participant is a former or current smoker, documents the average number of pipe bowls he/she smokes or did smoke on a daily basis

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06144 Spinal cord injury physical health satisfaction rating scale

Numeric response of physical satisfaction of participant for the past four weeks

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C22341 Laboratory procedure anterior pituitary function menstrual cycle time type

The type related to cycle time of the menstrual the female subject/participant

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C10628 Diary day falls status

Describes whether the participant/subject experienced falls on a particular day

 Supplemental Falls Diary False Spinal Cord Injury Spinal Cord Injury
C14964 Sedation used indicator

Indicator of whether the participant was administered any sedation

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C06212 Bowel function SCI data constipation duration

The duration of participant's/subject's constipation.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C18132 Cystogram code

Cystogram code

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C12697 Electrophysiology motor nerve latency value

The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C18127 Xray urinary tract other finding text

Free-text field to specify other findings from the urinary tract X-ray study

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C12737 Needle electromyography interference pattern analysis technique name

The interference pattern technique used for analysis measure during needle electromyography

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C21632 Intensive care unit type

Type of intensive care unit the participant/subject is in

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C18149 Lipid disorder specify name

Specifies the name of lipid disorder diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06073 Pain treatment indicator

Indicator for whether the participant is using or receiving any treatment for the pain experienced

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
Displaying 1676 - 1700 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.