CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22305 Laboratory procedure thyroid function thyroxine serum value

The value related to concentration of thyroxine (t4) in the serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06142 Spinal cord injury general quality life scale

Numeric response of life quality satisfaction of participant for the past four weeks

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 False Spinal Cord Injury Spinal Cord Injury
C06221 Fecal incontinence solid stools frequency

The frequency of fecal incontinence to solid stools within the last three months.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19726 Laboratory procedure fasting insulin measurement

Measurement of the amount of insulin in the participant's blood when fasting

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental General Core False Spinal Cord Injury Spinal Cord Injury
C18765 Surgical or therapeutic procedure other text

The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C19316 Dermatome area name

Name of dermatome area

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C12702 Electrophysiology sensory nerve impulse direction type

The impulse direction put on the nerve during the sensory nerve conduction study

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C19386 Spine traumatic herniated nucleus polposus anatomic level anatomic site

The anatomic site level of traumatic herniated nuclear polposus in the spine

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

 Supplemental Medical History False Spinal Cord Injury Spinal Cord Injury
C06243 Gastrointestinal colonic transit time measurement

The total gastrointestinal or colonic transit time assessed by means of radioopaque markers and measured in hours.

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C15913 Quantitative sensory testing stimulation type

Type of QST stimulation

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19140 Discipline types

The types of disciplines relevant to rehabilitation services

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C06313 Psychogenic genital arousal scale

Scale for how the female participant's psychogenic genital arousal is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C00718 Tobacco use duration

Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06316 Menstruation scale

Scale for how the female participant's menstruation is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets v2.0 False Spinal Cord Injury Spinal Cord Injury
C06236 Stool defecation assistance past three months average duration

The average time duration in minutes during bowel movement that stool intermittently or continuously (in the case of a single defecation) comes out with or without assistance within the last three months

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22196 Laboratory procedure calcium creatinine urine value

The value related to subject/participant's concentration of calcium/creatinine in the urine

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19084 Spinal elements close manipulation & reduction indicator

The indicator related to closed manipulation and/or reduction of spinal elements in a spinal intervention

 Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C21668 ICD-10-CM code

Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C19346 Sensory evoked potential heat average scale

The average numeric value related to assessing somatosensory system functioning with heat

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C12728 Needle electromyography electrode type

Type of electrode used for the needle electromyography

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
Displaying 126 - 150 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.