CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21624 Vehicular protective device seat belt type

Type of seat belt used in the vehicle

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19246 Electrical perceptual threshold average value

Average value of electrical perceptual thresholds

 Supplemental Electrical Perceptual Thresholds False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19095 Pressure ulcer surgical treatment indicator

Indicator for surgical treatment of pressure ulcer

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19241 Sympathetic skin response mono poly-phasic type

Type of sympathetic skin response phase

 Supplemental Sympathetic Skin Responses False Spinal Cord Injury Spinal Cord Injury
C06212 Bowel function SCI data constipation duration

The duration of participant's/subject's constipation.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19340 Mean arterial pressure measurement value

Result of a mean average pressure determination, expressed as a numeric value in millimeters of mercury (mmHg) to the nearest even number. The average pressure on the arteries from the beginning of one heartbeat to the beginning of the next heartbeat. Formally, it is the product of the cardiac output and the systemic vascular resistance, plus the central venous pressure

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06187 Defecation method bowel care procedure used past four week main type

Type of main defecation method and bowel care procedures used within the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C19179 Pre spinal cord lesion endocrine metabolic condition diagnosed type

Type of endocrine & metabolic condition diagnosed before spinal cord lesion

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C18132 Cystogram code

Cystogram code

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C14649 Functional Disability Inventory (FDI) - child sports scale

The scale of the child's or adolescent's ability to performing activites in gym class when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form

 Supplemental Functional Disability Inventory - Child and Adolescent Form (FDI) True Spinal Cord Injury Spinal Cord Injury
C22808 Injury level dynamic light touch other text

Free-text field to indicate what other type of response the participant experiences from dynamic light touch at the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C12685 Wheelchair use frequency

Frequency with which the participant/subject uses their wheelchair, if applicable

 Supplemental Assistive/Mobility Devices and Orthoses False Spinal Cord Injury Spinal Cord Injury
C19401 Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting duration

Duration of long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C01017 Pediatric Glasgow Coma Scale (PGCS) - total score

Score for the participant's total Pediatric Glasgow Coma Scale (PGCS) score of the 3 tests, eye, motor, and verbal responses. A score of less than 9 would indicate that that participant is in a severe coma while a score of greater than 9 is a mild or no coma at all

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19103 Upper extremity surgery right soft tissue reconstruction tendon wrist performed indicator

The indicator for the surgical procedure of the right tendon for wrist extension in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C06435 Neuro-Musculoskeletal condition type

Type of neuro-musculoskeletal condition experienced or diagnosed

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06428 Spinal column injury extent type

In the presence of an injury through the spine, this element documents whether there is a single level spinal column injury or if there are multiple levels involved

 Supplemental International SCI Spinal Column Injury Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22816 Injury below pinprick response type

The type of response related to pinprick below the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C18883 Orthosis other text

The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

 Supplemental Assistive/Mobility Devices and Orthoses False Spinal Cord Injury Spinal Cord Injury
C06263 Bladder function detrusor maximum pressure value

Value of the maximum detrusor pressure on the participant/subject during filling cystometry

 Supplemental International SCI Urodynamic Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19415 Brain Motor Control Assessment (BMCA) - Muscle movement type

Type of muscle movement being evaluated as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
Displaying 301 - 325 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.