CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18144 Bowel care time stool pass care past three months average indicator

Indicator for whether the average time spent waiting for the last stool passes before ending bowel care is not applicable or unknown

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22269 Dual X-ray absorptiometry proximal tibia bone mineral density value

The value related to bone mineral density (BMD) found in the proximal tibia through dual X-ray absorptiometry (DEXA)

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C07081 Alcohol Use Disorders Identification Test (AUDIT) - Alcohol drink typical day number score

Score for the number of drinks the subject consumes on a day he or she is drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 Supplemental Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False Spinal Cord Injury Spinal Cord Injury
C05134 Therapy rehabilitation start date time

Date (and time, if applicable and known) on which the therapy or rehabilitation started

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C19460 Spine canal cord measurement not applicable indicator

Indicator for not applicable response

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C18145 Procedure perform time

Time of day at which the examination was taken measured in an hour/minute format (HHMM).

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C19314 Quantitative sensory testing threshold value

The threshold value for the indicated trial number for the sensation and threshold types selected in Quantitative Sensory Testing

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C18163 Gonadal disease specify name

Specifies the name of gonadal disease

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19332 Imaging two dimensional radio frequency tilt angle measurement

The measurement in degree for the two dimensional radio frequency tilt angle in imaging

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C01541 Weight measurement

Measurement of participant's weight

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06071 Pain interfere mood scale

Scale that evaluates to what extent pain has interfered with the participants mood

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C21640 Fall details assistive device specify text

The free-text field to specify the other type of assistive device used when the fall recorded in the Falls Diary occurred

 Supplemental Falls Diary False Spinal Cord Injury Spinal Cord Injury
C21623 Vehicular protective device safety restraint type

Type of child safety restraint used in the vehicle

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19245 Electrical perceptual threshold value

The value of electrical perceptual threshold

 Supplemental Electrical Perceptual Thresholds False Spinal Cord Injury Spinal Cord Injury
C58642 Cardiovascular disease family history type unknown indicator

Indicator of whether the type of cardiovascular disease of which the subject/participant's family has a history is unknown

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19094 Gastrointestinal tract surgical procedure other text

The free text field related to "Gastrointestinal tract surgical procedure indicator" specifying other text. Type of procedure

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19240 Sympathetic skin response frequency

Frequency of Sympathetic Skin Response

 Supplemental Sympathetic Skin Responses False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19079 Method Used Type

The type of method used for measuring temperature

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06173 Gastrointestinal anal sphincter dysfunction unrelate SCI indicator

Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
Displaying 251 - 275 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.