CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19279 Citizen country indicator

The indicator for whether participant is a citizen of country

 Exploratory Demographics False Spinal Cord Injury Spinal Cord Injury
C19085 Surgical procedure approach type

The type of approach taken in surgical procedure

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19189 Oral laxative tablets capsules granulates other text

The free-text field related to 'Oral laxative tablets capsules granulates type' specifying other text

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19127 Facility name

Name of facility

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19370 Frequency field of view phase measurement

Phase measurement of spatial encoding area of frequency image

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C20367 Pittsburgh Sleep Quality Index (PSQI) - Partner report loud snore past month scale

The scale to which the subject's partner reported loud snoring during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C22284 Thyroid disease prior thyroiditis diagnosis type

The type related to prior thyroiditis diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19473 Spine caliber integer range value

Value on the integer range of spine caliber

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19361 Lab test participant position type

The arrangement or orientation of the participant's body at the time the lab test was performed

 Supplemental Motor Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19307 Spine subluxation translation level measurement

Measure of subluxation from posterior aspect of vertebral body relative to nearest adjacent body (in mm)

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19162 Acute care unit admission date

The date at which participant was admitted to acute care unit

 Supplemental Acute Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C19494 Spinal cord injury upper extremity function complications status

The status of complications to upper extremity function like pain, spasms, contractures, edema, etc

 Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19130 Facility discharge date

Date when patient was discharged from facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C20375 Pittsburgh Sleep Quality Index (PSQI) - Total score

The total score, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C22299 Laboratory procedure thyroid function goiter presence status

The status related to presence of goiter

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Spinal Cord Injury Spinal Cord Injury
C19383 Spine extra-axial fluid point of maximum compression level anatomic site

The anatomic site level for point of maximum compression in area with an overdrainage of cerebrospinal fluid

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19136 Rehabilitation services assessment/reception indicator

Indicator for the assessment for or reception of rehabilitation services

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C22192 Laboratory procedure calcium plasma serum value

This variable documents abnormality in circulating total calcium level

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19188 Oral laxative medication indicator

Indicator for oral laxative medication use (within the last four weeks)

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C19343 Sensory evoked potential stimulation spine anatomic site

The anatomic site in the spine related to assessing somatosensory system functioning

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C19391 Spine degenerative feature indicator

Indicator for developmental feature in spine

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C19495 Spinal cord injury upper extremity hand reconstructive surgery status

Indicate whether upper extremity/hand reconstructive surgery was performed

 Supplemental-Highly Recommended International SCI Upper Extremity Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19480 Spinal cord injury dressing lower body status

The status related to spinal cord injur and dressing lower body

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 226 - 250 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.