CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1701 - 1725 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09720 Food Frequency Questionnaire - (FFQ)-fresh apples pears indicator

Average total amount of fresh apples or pears the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C02307 Adverse event verbatim term text

Text that describes the adverse event word for word as described by the participant/subject

 Supplemental Adverse Events False Spinal Cord Injury Spinal Cord Injury
C09845 Food Frequency Questionnaire - (FFQ)-low carbohydrate bars indicator

Average total amount of low carb bars the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09680 Food Frequency Questionnaire - (FFQ)-zinc duration

Duration of Zinc intake, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C08508 36-item Short Form Health Survey (SF-36) - Health limited bending kneeling stooping score

Score of surveyee-reported limited bending, kneeling, or stooping due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C12707 Electrophysiology H-reflex latency left value

The H-reflex duration of latency for the left side of the body

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06192 Fecal incontinence past three month average frequency

Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06009 SCI Classification motor neurological level right result

Result of the lowest key muscle on the right side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C22824 Injury below level cold allodynia intensity scale

The scale related to intensity if allodynia for cold below the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06122 Renography radioactive isotope type

Type of radioactive isotope used to perform the renography

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C17235 Swallowing Disturbance Questionnaire (SwDQ) - cough swallow liquid score

Score for how frequent the participant/subject coughs while swallowing liquids, as a part of Swallowing Disturbance Questionnaire (SDQ)

 Exploratory Swallowing Disturbance Questionnaire (SDQ) True Spinal Cord Injury Spinal Cord Injury
C09767 Food Frequency Questionnaire - (FFQ)-beef pork hot dogs indicator

Average total amount of beef or pork hot dogs the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C10687 Imaging diffusion first b value

Value, in square millimeters per second, of the first b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C12631 Deliver condition hypotonia grade

Grade of any hypotonia (floppiness) that was present at or soon after the participant/subject's delivery

 Supplemental-Highly Recommended Birth Injuries False Spinal Cord Injury Spinal Cord Injury
C14204 Emergency Medical Services (EMS) vehicle type

This refers to the Emergency Medical Services (EMS) vehicle that is used to transport the patient to the hospital. Choose one response

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C09727 Food Frequency Questionnaire - (FFQ)-other fruit juice indicator

Average total amount of other fruit juices the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C18145 Procedure perform time

Time of day at which the examination was taken measured in an hour/minute format (HHMM).

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06409 Skin thermoregulation pressure ulcer past year indicator

Indicator of the presence of a pressure ulcer during the last 12 months

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C06374 Pressure ulcer large diameter measurement

Measurement of the largest diameter of the pressure ulcer including undermining in mm

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06329 SCI Classification light touch total score

Total score of sensation of light touch on the right and left sides of the body

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C22832 Pain past treatment oral topical medication other text

Free-text field to indicate the type of oral and topical medication the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C13205 Generalized Anxiety Disorder (GAD-7) - feeling nervous scale

Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C09775 Food Frequency Questionnaire - (FFQ)-beef lamb main dish indicator

Average total amount of beef or lamb as a main dish the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09735 Food Frequency Questionnaire - (FFQ)-salsa picante taco sauce indicator

Average total amount of salsa, picante or taco sauce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
Displaying 1701 - 1725 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.