CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2357-C53041	C53041	Flatus incontinence indicator	The indicator related to flatus incontinence within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09688	C09688	Food Frequency Questionnaire - (FFQ)-potassium daily amount dose	Dose per day of potassium, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2122-C08516	C08516	36-item Short Form Health Survey (SF-36) - Difficulty work activities physical health indicator	Indicator for surveyee-reported difficulty performing work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Spinal Cord Injury	Spinal Cord Injury
F1735-C12733	C12733	Needle electromyography motor unit action potential complexity percent value	The complexity of the motor unit action potential measured during needle electromyography	Supplemental	Peripheral Nerve Studies	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06374	C06374	Pressure ulcer large diameter measurement	Measurement of the largest diameter of the pressure ulcer including undermining in mm	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06329	C06329	SCI Classification light touch total score	Total score of sensation of light touch on the right and left sides of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22832	C22832	Pain past treatment oral topical medication other text	Free-text field to indicate the type of oral and topical medication the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2120-C13205	C13205	Generalized Anxiety Disorder (GAD-7) - feeling nervous scale	Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09775	C09775	Food Frequency Questionnaire - (FFQ)-beef lamb main dish indicator	Average total amount of beef or lamb as a main dish the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09735	C09735	Food Frequency Questionnaire - (FFQ)-salsa picante taco sauce indicator	Average total amount of salsa, picante or taco sauce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1720-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F2031-C14698	C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06464	C06464	Non traumatic spinal cord injury etiology axis 1 level 3 category	The category of level 3 of axis 1 to classify the cause of non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C06194	C06194	Bowel function medication constipating agent type	Type of medication affecting bowel function / constipating agents	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06460	C06460	Non traumatic spinal cord injury etiology classification axis 1 level 1 category	The category of level 1 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18795	C18795	Cardiovascular function after last three month other text	The free-text field related to 'Cardiovascular function after last three month type' specifying other text. Types of cardiovascular function that may have occurred after the spinal cord lesion (within three months)	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06406	C06406	Hypohidrosis past three months status	Status of whether the subject had hypohidrosis after spinal cord lesion within the last three months. Hypohidrosis is defined as a loss of ability to sweat and is normally seen below the level of injury due to disruption of sympathetic outflow. Hypohidrosis may be total or partial	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06387	C06387	SCI Classification anal contraction voluntary indicator	Indicator of whether or not the patient can have a voluntary anal contraction	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22840	C22840	Pain current treatment frequency text	Free-text field to specify frequency of treatments the participant is currently receiving	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18118	C18118	Clearance date	Clearance date	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14641	C14641	Functional Disability Inventory (FDI) - child form walk bathroom scale	The scale of the child's or adolescent's ability to walk to the bathroom when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09783	C09783	Food Frequency Questionnaire - (FFQ)-cold breakfast cereal indicator	Average total amount of cold breakfast cereal the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2303-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21641	C21641	Fall details injury sustained test	Description of the injuries sustained when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1791-C21624	C21624	Vehicular protective device seat belt type	Type of seat belt used in the vehicle	Supplemental	Pre-Hospital Assessment Form	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.