CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1803-C19455	C19455	Spine transverse canal diameter caudal injury measurement	Measurement of transverse cord diameter rostral to injury	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C19223	C19223	ISNCSCI left neurological injury level anatomic site	The most caudal segment of the cord with intact sensation and antigravity (3 or more) muscle function strength on the left side, provided that there is normal (intact) sensory and motor function rostrally respectively. The NLI is the most cephalad of the sensory and motor levels	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C21661	C21661	Follow-up care other text	Describes other types of follow-up care the subject/participant has received	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury
F1742-C18611	C18611	Imaging field of view axis 2 measurement	Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1708-C19490	C19490	Spinal cord injury toileting assessment status	The status related to toileting and spinal cord injury	Supplemental	International SCI Activities and Participation Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20361	C20361	Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale	The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C19247	C19247	Subject ID	Subject identification ID	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19463	C19463	Acute spinal cord injury features integer range value	Value on the integer range for acute spinal cord injury feature	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C19342	C19342	Measurement not reported reason	The reason that a value was not reported for a measurement	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19129	C19129	Facility arrival time	Time at which patient arrived at facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1721-C19125	C19125	Patient participant interventional clinical research study trial enrollment indicator	Indicator for enrollment of patients/participants in interventional clinical research studies/trials	Supplemental	Other Investigational Treatments	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C19185	C19185	Urinary tract drug use other text	The free-text field related to 'Urinary tract drug use indicator' specifying other text. Indicator for urinary tract drugs used within the last year	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2589-C20369	C20369	Pittsburgh Sleep Quality Index (PSQI) - Other reason past month scale	The scale to which the subject had trouble sleeping for other reasons during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Exploratory	Pittsburgh Sleep Quality Index (PSQI)	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22286	C22286	Thyroid disease prior thyroid cancer diagnosis type	Type of prior thyroid cancer diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19372	C19372	Imaging exam pulse sequence inventory type	Type of exam pulse sequence inventory	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19166	C19166	Special care unit admittance indicator	Indicator for the admittance of participant to special care unit, including any Intensive Care or Step-Down Unit	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19496	C19496	Spinal cord injury upper extremity hand reconstructive surgery performed anatomic site	The anatomic site related to upper extremity or hand reconstructive surgery being performed due to spinal cord injury	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19132	C19132	Ventilator assistance utilization indicator	Indicator for the utilization of ventilator assistance on discharge	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22304	C22304	Laboratory procedure thyroid function triiodothyronine plasma serum value	The value related to concentration of triiodothyronine (T3) in the plasma/serum	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C55478	C55478	Spinal cord dysfunction non traumatic other specify text	The free text field to describe the other type of non-traumatic spinal cord dysfunction	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Spinal Cord Injury	Spinal Cord Injury
F1782-C19243	C19243	Sensory latency value	The value of latency in sensory response	Supplemental	Sensory Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19385	C19385	Spine vertebral fracture lower level anatomic site	The anatomic site related to vertebrate in the lower level with fracture	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1748-C19096	C19096	Surgery performed date	Date of last surgical intervention	Supplemental-Highly Recommended	International SCI Upper Extremity Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1723-C19138	C19138	Rehabilitation services received other text	The free text field related to "Rehabilitation services received type" specifying other text. The type of rehabilitation service	Supplemental	Rehabilitation Therapies	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.