CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19092 Urinary tract surgical procedure other text

The free text field related to "Urinary tract surgical procedures indicator" specifying the other text. The type of procedure

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19178 Pre spinal cord lesion pulmonary condition other text

The free-text field related to "Pre spinal cord lesion pulmonary condition type" specifying other text. Type of pulmonary conditions present before spinal cord lesion

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C19429 Brain Motor Control Assessment (BMCA) - Passive stretch type

Type of passive stretch assessed as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19402 Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting muscle count

Number of muscles examined in long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19187 Medication affecting bowel function constipating agent other text

The free-text field related to 'Bowel function medication indicator' specifying other text. Indicator for medication affecting bowel function/constipating agents (within the last four weeks)

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19100 Stabilization and fusion segment level

Level of stabilization and fusion segment in surgical procedure

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19207 Congenital deformity surgery date

The date of surgery on congenital deformity of spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C20384 Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale

The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C19416 Brain Motor Control Assessment (BMCA) - Response present indicator

Indicator of whether a muscle response was present as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C22316 Laboratory procedure adrenal function 24 hour cortisol urine value

The value related to concentration of cortisol tested in the urine over 24 hours

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19108 Upper extremity surgery left soft tissue tendon lengthenings performed indicator

The indicator for the surgical procedure of the restoration of left tendon/muscle releases or lengthenings in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19215 Systemic neuro-degenerative disorder surgery caused indicator

Indicator for surgery caused by systemic neuro-degenerative disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C19430 Brain Motor Control Assessment (BMCA) - Phasic stretch after discharge indicator

Indicator of after-discharge in phasic stretch (taps) evaluation as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C22332 Laboratory procedure anterior pituitary function prolactin plasma value

The value related to concentration of prolactin in the plasma

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Exploratory Electrical Perceptual Thresholds (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C19257 Residence area type

Type describing the participant's/subject's current location of residence

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C19090 Stabilization and fusion segment number

The number of the stabilization and fusion segment in the surgical procedure

 Supplemental International SCI Spinal Intervention and Spinal Procedures Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19116 Upper extremity surgery left osteotomy ulnar performed indicator

The indicator for the surgical procedure of the restoration of the left ulnar in an Osteotomy with or without rotation and/or Anthrodesis

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
C19352 Quantitative sensory testing light touch assessment result

Result for assessment of light touch sensation in quantitative sensory testing

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C19155 Specialized SCI center follow-up care indicator

Indicator for follow-up care from a specialized SCI center

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C19486 Leisure activity hour week count

The number of hours per week of spare time activities

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C20361 Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale

The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C19463 Acute spinal cord injury features integer range value

Value on the integer range for acute spinal cord injury feature

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
Displaying 51 - 75 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.