CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1801 - 1825 of 1886

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0825-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06224	C06224	Bowel care position past three months type	The indicator of whether the bowel care position was used within the past three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C06412	C06412	Injury vertebral indicator	Whether there was a spinal fracture and/or dislocation in addition to the spinal cord injury. Spinal fracture or dislocation is defined as any break, rupture, or crack through or between any part(s) of the vertebral column from the occiput to the coccyx	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06150	C06150	Urography method type	Identifies which methods were performed on the urinary tract	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06071	C06071	Pain interfere mood scale	Scale that evaluates to what extent pain has interfered with the participants mood	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06316	C06316	Menstruation scale	Scale for how the female participant's menstruation is affected by the spinal cord injury	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1425-C17417	C17417	Urine dipstick test nitrite status	Status of nitrite presence in urine dipstick test	Supplemental	International SCI Urinary Tract Infection Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06239	C06239	Constipation lifestyle alteration past three months scale	The scale that assesses lifestyle alteration due to constipation within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C18785	C18785	Gastrointestinal anal sphincter dysfunction unrelate SCI specify text	The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06004	C06004	Ventilatory assistance utilization frequency indicator	Documents any use of any type of ventilatory assistance used to sustain respiration on the date of final inpatient discharge (the date of discharge from the last inpatient rehabilitation hospital or discharge from the last acute care hospital if the patient is not admitted to a rehabilitation hospital)	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06244	C06244	Colonic transit right side measurement	The transit time of the caecum, ascending- and transverse colon assessed by means of radioopaque markers and measured in hours.	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C18143	C18143	Stool defecation assistance past three months average indicator	Indicator for whether the average time during bowel movement that stool intermittently or continuously comes out with or without assistance is not applicable or unknown	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C06317	C06317	Psychogenic erection scale	Psychogenic erection is erection that occurs solely based on arousal in the brain e.g. through hearing, seeing, feeling or fantasy (erotic thoughts). Psychogenic erection is penile tumescence with resulting increase in size and firmness of the penis that occurs without physical stimulation, which in usual circumstances should be adequate to allow penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1736-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Sympathetic Skin Responses	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14645	C14645	Functional Disability Inventory (FDI) - child form eat meal scale	The scale of the child's or adolescent's ability to eat regular meals when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F2121-C14653	C14653	Functional Disability Inventory (FDI) - child form run football field scale	The scale of the child's or adolescent's ability to run the length of a football field when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F1732-C15935	C15935	Exam room temperature measurement	The exam room temperature at the time of testing	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C15920	C15920	Quantitative sensory testing test equipment text	Description of equipment used for testing	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14646	C14646	Functional Disability Inventory (FDI) - child form up all day scale	The scale of the child's or adolescent's ability to stay awake all day without taking a nap or rest when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F2121-C14654	C14654	Functional Disability Inventory (FDI) - child form shopping scale	The scale of the child's or adolescent's ability to go shopping when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury
F1732-C18024	C18024	Temperature skin unit of measure	The units of measure for participant/subject's baseline skin temperature	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C15921	C15921	Quantitative sensory testing maximum stimulation intensity value	Measure of the maximum level of stimulation used during the testing	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1739-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Electrical Perceptual Thresholds	False	Spinal Cord Injury	Spinal Cord Injury
F2121-C14647	C14647	Functional Disability Inventory (FDI) - child form riding bus car scale	The scale of the child's or adolescent's ability to ride the bus to school or travel in a car when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Spinal Cord Injury	Spinal Cord Injury

Displaying 1801 - 1825 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.