CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20364 Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale

The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20365 Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale

The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20373 Pittsburgh Sleep Quality Index (PSQI) - Problem maintain enthusiasm past month category

The scale to which the subject had problems keeping up enough enthusiasm to get things done past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20357 Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale

The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C20380 Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale

The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Exploratory Pittsburgh Sleep Quality Index (PSQI) False Spinal Cord Injury Spinal Cord Injury
C55476 Congenital genetic spinal cord injury etiology specify text

The free text field to describe the congenital or genetic etiology of spinal cord injury

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C55478 Spinal cord dysfunction non traumatic other specify text

The free text field to describe the other type of non-traumatic spinal cord dysfunction

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C19785 Medical history pulmonary bilevel positive airway pressure start date

Date of start of bilevel positive airway pressure

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22282 Thyroid disease prior goiter diagnosis date

Date when prior goiter thyroid disease was diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22297 Laboratory procedure thyroid function diagnosis date

Date when thyroid function laboratory tests or new diagnosis were performed/made

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22191 Laboratory procedure calcium bone metabolism collected date

Date (and time if applicable and known) when the calcium bone metabolism specimen was collected

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22240 Laboratory procedure N telopeptide urine value

Value of N telopeptide urine taken from laboratory procedure

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22269 Dual X-ray absorptiometry proximal tibia bone mineral density value

The value related to bone mineral density (BMD) found in the proximal tibia through dual X-ray absorptiometry (DEXA)

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22330 Laboratory procedure gonadal function free testosterone serum value

The value related to concentration of free testosterone in serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22344 Laboratory procedure posterior pituitary function fluid deprivation desmopressin acetate test result

Result of the fluid deprivation test with DDAVP

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22192 Laboratory procedure calcium plasma serum value

This variable documents abnormality in circulating total calcium level

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22242 Laboratory procedure C telopeptide plasma serum value

Value of C telopeptide plasma serum gathered within the laboratory procedure

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22271 Dual X-ray absorptiometry radius bone mineral density value

The value related to bone mineral density (BMD) found in the radius through dual X-ray absorptiometry (DEXA)

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22314 Laboratory procedure adrenal function fasting cortisol serum value

The value related to concentration of cortisol tested between 6 and 8 am, following a fast

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22331 Laboratory procedure gonadal function estradiol plasma serum value

The value related to concentration of estradiol in the plasma/serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22346 Laboratory procedure sympathetic nervous function norephrine supine plasma value

The value related to concentration of plasma norepinephrine when participant/subject is supine

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22285 Thyroid disease prior thyroiditis diagnosis date

Date when prior thyroiditis disease was diagnosed

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22300 Laboratory procedure thyroid function thyroid-stimulating hormone plasma serum value

The value related to concentration of thyroid stimulating hormone (TSH) in the plasma/serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22193 Laboratory procedure calcium plasma ionized value

This variable documents abnormality in circulating ionized calcium level

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
Displaying 176 - 200 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.