CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0823-C06229	C06229	Bowel management independence past three months scale	The scale that assesses the participant's degree of independence during bowel management within the last three months.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C18790	C18790	Perianal problem other text	The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C06012	C06012	Urinary tract impairment unrelate injury indicator	Indicator of urinary tract impairment unrelated to spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06258	C06258	Bladder function bladder sensation type	Documents the bladder sensation during filling cystometry. Although the bladder sensation is assessed during filling cystometry the assumption that it is sensation from the bladder alone, without urethral or pelvic components may be false (Abrams et al. 2002). Normal bladder sensation can be judged by three defined points noted during filling cystometry and evaluated in relation to the bladder volume at that moment and in relation to the patient's symptomatic complaints	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C06293	C06293	Medical history condition type indicator	Indicator of whether the participant/subject has a history of the pre-specified medical condition/disease.	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06317	C06317	Psychogenic erection scale	Psychogenic erection is erection that occurs solely based on arousal in the brain e.g. through hearing, seeing, feeling or fantasy (erotic thoughts). Psychogenic erection is penile tumescence with resulting increase in size and firmness of the penis that occurs without physical stimulation, which in usual circumstances should be adequate to allow penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06103	C06103	Tobacco smoke quit date	Date (and time, if applicable and known) the participant/subject quit smoking	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2604-C18797	C18797	Sexual problem unrelate spinal cord lesion specify text	The free-text field related to 'Sexual problem unrelate spinal cord lesion indicator'. Indicator of whether the person complained of sexual issues prior to or after the spinal cord lesion that are unrelated to the spinal cord lesion	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06240	C06240	Bowel dysfunction impact life quality scale	The self report scale that describes impact on quality of life caused by neurogenic bowel dysfunction.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53037	C53037	Fecal incontinence past four week average frequency	Average frequency of incontinence to solid or liquid stools within the last four weeks. Fecal incontinence is defined as involuntary passage of stools	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18151	C18151	Thyroid disease specify name	Specifies the name of thyroid disease diagnosed	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F0818-C06006	C06006	SCI Classification sensory neurological level left result	Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch	Supplemental-Highly Recommended	International SCI Core Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06326	C06326	SCI Classification sensory exam anatomic site	Spinal cord level evaluated during the sensory examination	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22831	C22831	Pain past treatment oral topical medication type	The type of past oral and topical medication the participant received for pain	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06059	C06059	Pain location anatomic site	Anatomic site on the body where the pain is experienced	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0834-C06463	C06463	Non traumatic spinal cord injury iatrogenic indicator	Indicate whether there was any iatrogenic role in the etiology of the non-traumatic spinal cord injury	Supplemental	International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F1726-C06023	C06023	Urinary tract drug type	Type of drug, systemic or intravesical, for the urinary tract used	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06426	C06426	Spinal cord injury type	The mechanism of spinal cord injury	Supplemental	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C18794	C18794	Cardiovascular event after spinal cord lesion other text	The free-text field related to 'Cardiovascular event after spinal cord lesion type' specifying other text. Events related to cardiovascular functions that may have occurred at any time after the spinal cord lesion	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0832-C06405	C06405	Hyperhidrosis past three months status	Status of whether the subject had hyperhidrosis after spinal cord lesion within the last three months. Hyperhidrosis is defined as excessive sweating above or below level of injury in the absence of increased ambient temperature	Supplemental	International SCI Skin and Thermoregulation Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06348	C06348	SCI Classification anal sensation indicator	Indicator of whether or not the person has any anal sensation	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22839	C22839	Pain current treatment dose text	Free-text field to specify dose of treatments the participant is currently receiving	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0821-C18117	C18117	Renography result type	The type of results related to renography	Supplemental	International SCI Urinary Tract Imaging Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C06071	C06071	Pain interfere mood scale	Scale that evaluates to what extent pain has interfered with the participants mood	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21640	C21640	Fall details assistive device specify text	The free-text field to specify the other type of assistive device used when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.