CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18150 Thyroid disease indicator

Indicator for thyroid disease

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06010 ASIA Impairment Scale

Scale for the participant's/subject's impairment level on The American Spinal Injury Association (ASIA) Impairment Scale classification, which attempts to quantitate the degree of impairment

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C06061 Pain type

Type of pain present. Eight broad types of pain are specified based on the new SCI pain taxonomy that has been published and validated (Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Lundeberg T et al.
International spinal cord injury pain (ISCIP) classification: part I. Background and description. Spinal Cord 2012; 50: 413-417. and Bryce TN, Biering-Sorensen F, Finnerup NB, Cardenas DD, Defrin R, Ivan E et al.
International spinal cord injury pain (ISCIP) classification: part 2. Initial validation using vignettes. Spinal Cord 2012; 50: 404-412.)

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C06467 Non traumatic spinal cord injury axis 2 ICD version number

ICD version used to classify the etiology of non-traumatic spinal cord injury

 Supplemental International Non-Traumatic Spinal Cord Injury Basic and Extended Data Sets False Spinal Cord Injury Spinal Cord Injury
C06251 Medication cardiovascular function type

Type of medication affecting cardiovascular functions.

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C06463 Non traumatic spinal cord injury iatrogenic indicator

Indicate whether there was any iatrogenic role in the etiology of the non-traumatic spinal cord injury

 Supplemental History of Injury False Spinal Cord Injury Spinal Cord Injury
C06409 Skin thermoregulation pressure ulcer past year indicator

Indicator of the presence of a pressure ulcer during the last 12 months

 Supplemental International SCI Skin and Thermoregulation Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C53047 Oral laxative tablet capsule granulate type

Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06420 SCI Classification motor strength lower limb single side score

Score of motor strength for the lower limb on the specific side

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C22803 Pain manageable last week day count

Number of days the participant had manageable pain in the last week

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22645 Spinal cord injury non traumatic etiology type

Etiology of the spinal cord injury. Traumatic spinal cord injury is impairment of the spinal cord or cauda equina function resulting from the application of an external force of any magnitude

 Core History of Injury False Spinal Cord Injury Spinal Cord Injury
C06215 Abdominal bloating frequency

The frequency of abdominal bloating within the last three months.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06191 Defecation past four week average frequency

Average frequency of defecation within the last four weeks

 Supplemental International SCI Bowel Function Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C18136 Void cystogram results type

Results of voiding cystogram performed on the urinary tract

 Supplemental International SCI Urinary Tract Imaging Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06387 SCI Classification anal contraction voluntary indicator

Indicator of whether or not the patient can have a voluntary anal contraction

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C22811 Injury below level dynamic light touch other text

Free-text field to indicate what other type of response the participant experiences from dynamic light touch below the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06258 Bladder function bladder sensation type

Documents the bladder sensation during filling cystometry. Although the bladder sensation is assessed during filling cystometry the assumption that it is sensation from the bladder alone, without urethral or pelvic components may be false (Abrams et al. 2002). Normal bladder sensation can be judged by three defined points noted during filling cystometry and evaluated in relation to the bladder volume at that moment and in relation to the patient's symptomatic complaints

 Supplemental International SCI Urodynamic Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06440 Fragility fracture indicator

Indicator of whether the fracture is a fragility fracture. Fragility fractures result from low force injuries insufficient to fracture normal bone

 Supplemental International SCI Musculoskeletal Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06247 Cardiovascular event after spinal cord lesion type

Events related to cardiovascular functions that may have occurred at any time after the spinal cord lesion.

 Supplemental International SCI Cardiovascular Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06431 Spinal injury traumatic translation indicator

For each of the spinal column injury level(s) whether there was any traumatic translation (occiput to sacrum). Translation is defined as sagittal and/or coronal plane mal-alignment of adjacent vertebra as seen on lateral and/or AP radiographs respectively; it consists of movement of 3.5 mm or more of one cervical vertebra on top of the adjacent vertebra or movement of 2.5 mm or more of one thoracic and lumbar vertebra on top of the adjacent vertebra1 (on available imaging)

 Supplemental International SCI Spinal Column Injury Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06173 Gastrointestinal anal sphincter dysfunction unrelate SCI indicator

Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI

 Supplemental International SCI Bowel Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Core International Standards for Neurological Classification of SCI Worksheet False Spinal Cord Injury Spinal Cord Injury
C22819 Injury level cold response type

The type of response related to cold at the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
Displaying 226 - 250 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.