CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2303-C22807	C22807	Injury level dynamic light touch response type	The type of response related to dynamic light touch at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06432	C06432	Neuro-Musculoskeletal history before spinal cord lesion type	Type of neuro-musculoskeletal history before spinal cord lesion	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0831-C06427	C06427	Spinal column injury indicator	Indicator of whether there was any disruption through the spinal column including the bony vertebral elements and their supporting ligaments, capsules, discs, and other supporting soft tissues	Supplemental	International SCI Spinal Column Injury Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06421	C06421	SCI Classification light touch single side score	Score of sensation of light touch for the specific side of the body	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F2303-C22815	C22815	Injury level pinprick hyperalgesia intensity scale	The scale related to intensity if hyperalgesia for pinprick at the level of injury	Supplemental	International SCI Pain Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0820-C06262	C06262	Bladder function detrusor leak point pressure value	Value of the lowest detrusor pressure on the participant/subject at which urine leakage occurs	Supplemental	International SCI Urodynamic Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22312	C22312	Laboratory procedure thyroid function thyroid antibodies status	The status related to thyroid antibodies	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0833-C06450	C06450	Neuromuscular scoliosis indicator	Indicator of any appreciable observable lateral deviation in the normally straight vertical line of the spine due to the sequelae of spinal cord injury (SCI)	Supplemental	International SCI Musculoskeletal Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0827-C06251	C06251	Medication cardiovascular function type	Type of medication affecting cardiovascular functions.	Supplemental	International SCI Cardiovascular Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0822-C06191	C06191	Defecation past four week average frequency	Average frequency of defecation within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06008	C06008	SCI Classification motor neurological level left result	Result of the lowest key muscle on the left side of the body that has a grade of at least 3, provided the key muscles represented by segments above that level are judged to be normal (grade 5)	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C06173	C06173	Gastrointestinal anal sphincter dysfunction unrelate SCI indicator	Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06259	C06259	Bladder function detrusor function type	Type of magnitude of the detrusor function on the participant/subject	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0825-C06318	C06318	Reflex erection scale	A reflex erection is penile tumescence with resulting increase in size and firmness of the penis that occurs with genital stimulation, which in usual circumstances should be adequate to allow vaginal penetration	Supplemental	International SCI Female and Male Sexual Function Basic Data Sets	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06105	C06105	Pulmonary complication or condition after spinal cord lesion last year indicator	Indicator of whether the specific pulmonary complication or condition occurred after the spinal cord lesion and within the last year	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C06241	C06241	Anal tone examination result	The result of digital examination of anal tone.	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2357-C53041	C53041	Flatus incontinence indicator	The indicator related to flatus incontinence within the last four weeks	Supplemental	International SCI Bowel Function Basic Data Set Version 2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06416	C06416	Colonic transit left side measurement	The transit time of the descending colon (including the splenic flexure) and the rectosigmoid assessed by means of radioopaque markers and measured in hours.	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F0826-C06007	C06007	SCI Classification sensory neurological level right result	Result of the most caudal segment of the spinal cord on the right side of the body with normal sensory function for pinprick and light touch	Core	International Standards for Neurological Classification of SCI Worksheet	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06113	C06113	Ventilatory assistance type utilized start date	Date (and time, if applicable and known) the specific ventilatory assistance device (only for diaphragmatic pacing, phrenic nerve stimulation, or bi-level positive airway pressure) was inserted or its use started	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C06021	C06021	Urinary incontinence collect appliance type	Type or types of collecting appliances for urinary incontinence. Collecting appliances are any externally applied aids to avoid urinary leakage, or devices for collection of urine	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0823-C18791	C18791	Bowel care position past three months other text	The free-text field related to 'Bowel care position past three months type' specifying other text. The indicator of whether the bowel care position was used within the past three months	Supplemental	International SCI Bowel Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C18165	C18165	Pituitary disease specify name	Specifies the name of pituitary disease	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.