CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2069-C21643	C21643	Fall details specify type	Description of what the participant/subject was doing when the fall recorded in Falls Diary occurred when not walking	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21636	C21636	Fall details location text	Location of the fall the participant/subject experienced recorded in the Falls Diary	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C58652	C58652	Fall record time AM PM category	Category of the part of the day in which the time of the subject/participant's fall occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21637	C21637	Fall details footwear type	Type of footwear the participant/subject was wearing when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C10628	C10628	Diary day falls status	Describes whether the participant/subject experienced falls on a particular day	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21638	C21638	Fall details footwear specify text	The free-text field to specify the type of other footwear worn when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C10629	C10629	Diary day falls experienced number	Number of falls the participant/subject experienced on a particular day	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21639	C21639	Fall details assistive device type	Type of assistive device(s) the participant/subject was using when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C10630	C10630	Diary day near falls experienced number	Number of near falls the participant/subject experienced on a particular day	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21640	C21640	Fall details assistive device specify text	The free-text field to specify the other type of assistive device used when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C19144	C19144	Activity description	Description of activity	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F2069-C21641	C21641	Fall details injury sustained test	Description of the injuries sustained when the fall recorded in the Falls Diary occurred	Supplemental	Falls Diary	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F1759-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Exploratory	Family History	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09861	C09861	Food Frequency Questionnaire - (FFQ)-fat frying spray indicator	Type of fat the subject usually uses at home for frying and sautÉing this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09821	C09821	Food Frequency Questionnaire - (FFQ)-candy bars indicator	Average total amount of candy bars the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09869	C09869	Food Frequency Questionnaire - (FFQ)-special diet indicator	Indicator of whether or not the subject follows a special diet, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09829	C09829	Food Frequency Questionnaire - (FFQ)-other ready made cookies indicator	Average total amount of other ready-made cookies the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09877	C09877	Food Frequency Questionnaire - (FFQ)-egg use ten years indicator	Indicator of how the subjects use of eggs changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09837	C09837	Food Frequency Questionnaire - (FFQ)-fat free reduced sweet roll coffee cake other pastry indicator	Average total amount of fat free or reduced fat sweet roll, coffee cake or other pastry, the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09845	C09845	Food Frequency Questionnaire - (FFQ)-low carbohydrate bars indicator	Average total amount of low carb bars the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09805	C09805	Food Frequency Questionnaire - (FFQ)-carbonated beverage caffeine sugar indicator	Average total amount of carbonated beverage with caffeine and sugar the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.