CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0009-C02303	C02303	Adverse event outcome status	Final status of the participant/subject related to the adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02311	C02311	Adverse event MedDRA lower level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02304	C02304	Adverse event relatedness scale	Scale of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C18659	C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02305	C02305	Adverse event severity scale grade	The grading scale of the severity or intensity of the adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C22702	C22702	Institutional review board notification indicator	Indicator of whether the Institutional Review Board (IRB) was notified following an adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F0009-C22703	C22703	Serious adverse event form completion indicator	Indicator of whether the Serious Adverse Event (SAE) form was completed following an adverse event	Supplemental	Adverse Events	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00718	C00718	Tobacco use duration	Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C19502	C19502	Tobacco cigarettes smoke daily average value	Tobacco cigarettes smoked daily average number	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06102	C06102	Tobacco smoke history status	Qualitative categorization of the participant's/subject's smoking history	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06103	C06103	Tobacco smoke quit date	Date (and time, if applicable and known) the participant/subject quit smoking	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06106	C06106	Tobacco cigar smoke daily average value	If participant is a former or current smoker, documents the average number of cigars he/she smokes or did smoke on a daily basis	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06107	C06107	Tobacco pipe bowl smoke daily average value	If participant is a former or current smoker, documents the average number of pipe bowls he/she smokes or did smoke on a daily basis	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C06108	C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F1727-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Alcohol and Tobacco Use	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07090	C07090	Alcohol Use Disorders Identification Test (AUDIT) - Total score	The subject/participant's AUDIT total score (0-40), as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07082	C07082	Alcohol Use Disorders Identification Test (AUDIT) - More than 6 alcohol drink frequency score	Score for the frequency with which the subject consumes six or more alcoholic drinks on a single occasion, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07083	C07083	Alcohol Use Disorders Identification Test (AUDIT) - Cannot stop drink alcohol frequency score	Score for the frequency within the last year with which the subject found himself or herself unable to stop drinking once he or she started, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07084	C07084	Alcohol Use Disorders Identification Test (AUDIT) - Fail normal activity drink frequency score	The frequency with which the subject found himself or herself unable to perform normal tasks due to drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07085	C07085	Alcohol Use Disorders Identification Test (AUDIT) - Morning drink after frequency score	The frequency with which the subject found himself or herself in need of an alcoholic drink in the morning due to a heavy drinking session the night before, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07086	C07086	Alcohol Use Disorders Identification Test (AUDIT) - Guilt remorse after drink frequency score	Score for the frequency within the last year with which the subject found himself or herself with feelings or guilt or remorse after drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07087	C07087	Alcohol Use Disorders Identification Test (AUDIT) - Cannot remember night before frequency score	Score for the frequency within the last year with which the subject was unable to remember what happened the previous night due to drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.