CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06122 Renography radioactive isotope type

Type of radioactive isotope used to perform the renography

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06060 Pain location indicator

Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site

 Supplemental International SCI Pain Basic Data Subset False Spinal Cord Injury Spinal Cord Injury
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19129 Facility arrival time

Time at which patient arrived at facility

 Supplemental Rehabilitation Admission/Discharge False Spinal Cord Injury Spinal Cord Injury
C22705 Urinary incontinence collect appliance indicator

Indicator for collecting appliances for urinary incontinence. Collecting appliances are any externally applied aids to avoid urinary leakage, or devices for collection of urine

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Urinary Tract Infection Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22297 Laboratory procedure thyroid function diagnosis date

Date when thyroid function laboratory tests or new diagnosis were performed/made

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19160 Discharge facility type

The type of facility to which the participant was discharged

 Supplemental International SCI Core Data Set v2.0 False Spinal Cord Injury Spinal Cord Injury
C06217 Respiratory discomfort distended abdomen frequency

The frequency of any respiratory discomfort (shortness of breath/difficulty in taking a deep breath) considered to be entirely or partly due to a distended abdomen within the last three months.

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C19247 Subject ID

Subject identification ID

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C15531 Imaging evoked potential stimulation frequency value

The stimulation frequency used on the participant/subject as part of the Blink Reflex and Evoked Potential Imaging test

 Supplemental Sensory Evoked Potentials False Spinal Cord Injury Spinal Cord Injury
C12698 Electrophysiology motor nerve segment length measurement

The nerve segment length measured during the motor nerve conduction study

 Supplemental Peripheral Nerve Studies False Spinal Cord Injury Spinal Cord Injury
C19382 Spine extra-axial fluid lower limit level anatomic site

The anatomic site lower limit of level with an overdrainage of cerebrospinal fluid

 Supplemental Magnetic Resonance Imaging False Spinal Cord Injury Spinal Cord Injury
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

 Supplemental Medical History False Spinal Cord Injury Spinal Cord Injury
C06156 Kidney stone laterality type

The laterality type related to kidney stones present. This means urinary stone(s) was/were found in the renal pelvis or renal parenchyma on either side

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental Quantitative Sensory Testing False Spinal Cord Injury Spinal Cord Injury
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental Rehabilitation Therapies False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C17420 Urinary culture species text

Text to name a bacteria species in urine culture sample

 Supplemental International SCI Urinary Tract Infection Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C59691 Spinal cord injury social life satisfaction scale

Numeric response of social life satisfaction of participant for the past four weeks

 Supplemental International SCI Quality of Life Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C00718 Tobacco use duration

Duration in years participant/subject has used tobacco products (e.g. cigarettes, cigars, chewing tobacco or pipe)

 Supplemental Alcohol and Tobacco Use False Spinal Cord Injury Spinal Cord Injury
C05450 Abbreviated Injury Scale body region score

Score for the body region measured by Abbreviated Injury Scale

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C19110 Upper extremity surgery left soft tissue other performed indicator

The indicator for the surgical procedure of the restoration of something other on the left side in soft tissue reconstruction

 Supplemental Surgical and Procedural Interventions False Spinal Cord Injury Spinal Cord Injury
Displaying 326 - 350 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.