CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1732-C19313	C19313	Quantitative sensory testing average threshold value	The average threshold value over all trials for the sensation and threshold types selected in Quantitative Sensory Testing	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F0830-C18161	C18161	Adrenal disease specify name	Specifies the name of adrenal disease diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C06002	C06002	Inpatient treatment total day number	Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
f1742-C19331	C19331	Imaging number of excitations count	The count as related to number of diffusion tensor imaging acquisitions or number of excitations	Supplemental	Diffusion Tensor Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06070	C06070	Pain interfere daily activity scale	Scale that evaluates to what extent pain has interfered with the participant's daily activities	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C06293	C06293	Medical history condition type indicator	Indicator of whether the participant/subject has a history of the pre-specified medical condition/disease.	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1720-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Exam	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C18765	C18765	Surgical or therapeutic procedure other text	The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22281	C22281	Thyroid disease prior goiter diagnosis type	The type related to prior thyroid disease of goiter diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F0371-C07088	C07088	Alcohol Use Disorders Identification Test (AUDIT) - Drink injury indicator score	Score for the indicator of whether someone that the subject knows was injured due to his or her drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)	Supplemental	Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT)	False	Spinal Cord Injury	Spinal Cord Injury
F2513-C06006	C06006	SCI Classification sensory neurological level left result	Result of the most caudal segment of the spinal cord on the left side of the body with normal sensory function for pinprick and light touch	Supplemental	International SCI Core Data Set v2.0	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19470	C19470	Spine upper level anatomic site	Anatomic site on the upper level of the spinal cord	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1780-C19338	C19338	Electrophysiology test coil location text	Text articulating the location of coil in electrophysiology test	Supplemental	Motor Evoked Potentials	False	Spinal Cord Injury	Spinal Cord Injury
F1732-C58649	C58649	Quantitative sensory testing decrease stimulation rate unit of measure	The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"	Supplemental	Quantitative Sensory Testing	False	Spinal Cord Injury	Spinal Cord Injury
F1803-C19261	C19261	Imaging magnetic resonance imaging quality result	Image quality of magnetic resonance image	Supplemental	Magnetic Resonance Imaging	False	Spinal Cord Injury	Spinal Cord Injury
F1724-C19159	C19159	Care provision level	The level of care provided to participant by health care facility	Supplemental	Acute Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F1717-C06117	C06117	Peak expiratory flow measurement	Peak expiratory flow (PEF) value measured in liters/minute. PEF is the maximal expiratory flow rate achieved during the forced vital capacity (FVC) maneuver	Supplemental	Vital Signs and Tests	False	Spinal Cord Injury	Spinal Cord Injury
F1731-C06059	C06059	Pain location anatomic site	Anatomic site on the body where the pain is experienced	Supplemental	International SCI Pain Basic Data Subset	False	Spinal Cord Injury	Spinal Cord Injury
F0829-C19785	C19785	Medical history pulmonary bilevel positive airway pressure start date	Date of start of bilevel positive airway pressure	Supplemental	International SCI Pulmonary Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1722-C19128	C19128	Facility arrival date	Date when patient arrived at facility	Supplemental	Rehabilitation Admission/Discharge	False	Spinal Cord Injury	Spinal Cord Injury
F0819-C21671	C21671	Urinary tract antibiotic antiseptic use reason	Reason antibiotics or antiseptics were used for the urinary tract	Supplemental	International SCI Lower Urinary Tract Function Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F1425-C06000	C06000	Site identifier number	Unique identification number given to the study site to distinguish the location where data is recorded	Supplemental	International SCI Urinary Tract Infection Basic Data Set	False	Spinal Cord Injury	Spinal Cord Injury
F2177-C22294	C22294	Thyroid disease prior diagnosis other date	Date when other thyroid disease was diagnosed	Supplemental	International SCI Endocrine and Metabolic Function Extended Data Set	False	Spinal Cord Injury	Spinal Cord Injury

Displaying 301 - 325 of 1886

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.