CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01022 Pediatric Glasgow Coma Scale (PGCS) - verbal response score

Score for the participant's verbal response according to the Pediatric Glasgow Coma Scale (PGCS) if the participant is under the age of 18

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C06260 Bladder function bladder compliance type

Type of bladder compliance of the participant/subject during filling cystometry

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C06359 Osteoporosis diagnosis method type

Method used to diagnosis osteoporosis

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06319 Ejaculation scale

Scale for how the male participant's ejaculation is affected by the spinal cord injury

 Supplemental International SCI Female and Male Sexual Function Basic Data Sets False Spinal Cord Injury Spinal Cord Injury
C19481 Spinal cord injury feeding ability status

The status for feeding ability and spinal cord injury

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22819 Injury level cold response type

The type of response related to cold at the level of injury

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C21645 Orthosis walker type

Type of walker the participant/subject uses

 Supplemental Assistive/Mobility Devices and Orthoses False Spinal Cord Injury Spinal Cord Injury
C06106 Tobacco cigar smoke daily average value

If participant is a former or current smoker, documents the average number of cigars he/she smokes or did smoke on a daily basis

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Lower Urinary Tract Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19418 Brain Motor Control Assessment (BMCA) - Comments text

The free-text field for additional comments as part of the Brain Motor Control Assessment (BMCA)

 Supplemental Brain Motor Control Assessment False Spinal Cord Injury Spinal Cord Injury
C06242 Anal canal voluntary contraction indicator

Indicator of whether the anal canal can voluntary contract. This is the result of the digital evaluation of voluntary contraction of the anal canal and is an assessment of the voluntary function of the external anal sphincter muscle

 Supplemental International SCI Bowel Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C22322 Laboratory procedure gonadal function testosterone plasma serum value

The value related to concentration of the testosterone in the plasma/serum

 Supplemental International SCI Endocrine and Metabolic Function Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

 Supplemental Diffusion Tensor Imaging False Spinal Cord Injury Spinal Cord Injury
C07443 Satisfaction with Life Scale (SWLS) - Life condition excellence score

Score of subject's life condition, as part of the Satisfaction with Life Scale (SWLS)

 Supplemental Satisfaction with Life Scale False Spinal Cord Injury Spinal Cord Injury
C06106 Tobacco cigar smoke daily average value

If participant is a former or current smoker, documents the average number of cigars he/she smokes or did smoke on a daily basis

 Supplemental Alcohol and Tobacco Use False Spinal Cord Injury Spinal Cord Injury
C05459 Cardiac arrest indicator

Indicator of cardiac arrest requiring cardiopulmonary resuscitation (i.e. at least two minutes of chest compressions). Cardiac arrest is a condition in which the heart suddenly and unexpectedly stops beating

 Supplemental Pre-Hospital Assessment Form False Spinal Cord Injury Spinal Cord Injury
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

 Supplemental Demographics False Spinal Cord Injury Spinal Cord Injury
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

 Supplemental Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C18123 Xray study urinary tract global result type

The result type related to the X-ray study of the urinary tract found functional and anatomical conditions

 Supplemental Vital Signs and Tests False Spinal Cord Injury Spinal Cord Injury
C18148 Lipid disorder Indicator

Indicator for lipid disorder

 Supplemental International SCI Endocrine and Metabolic Function Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C19489 Relationship spouse status

The status of spousal relationship

 Supplemental International SCI Activities and Participation Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C22827 Pain past treatment passive stimulation therapy type

The type of past passive and stimulation therapy treatment the participant received for pain

 Supplemental International SCI Pain Extended Data Set False Spinal Cord Injury Spinal Cord Injury
C06114 Mechanical ventilation utilization frequency

Specifies frequency that the participant/ subject uses mechanical ventilation

 Supplemental International SCI Pulmonary Basic Data Set False Spinal Cord Injury Spinal Cord Injury
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 Supplemental International SCI Quality of Life Basic Data Set Version 2.0 False Spinal Cord Injury Spinal Cord Injury
Displaying 276 - 300 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.