CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2075-C09731	C09731	Food Frequency Questionnaire - (FFQ)-apricots indicator	Average amount of apricots the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2118-C17234	C17234	Swallowing Disturbance Questionnaire (SwDQ) - lump food stuck throat meal score	Score for how frequent the participant/subject feels as if a lump of food is stuck in the throat while eating, as a part of Swallowing Disturbance Questionnaire (SDQ)	Exploratory	Swallowing Disturbance Questionnaire (SDQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2076-C19245	C19245	Electrical perceptual threshold value	The value of electrical perceptual threshold	Exploratory	Electrical Perceptual Thresholds (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09779	C09779	Food Frequency Questionnaire - (FFQ)-breaded fish cakes pieces fish sticks indicator	Average total amount of breaded fish cakes, pieces, or fish sticks the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09739	C09739	Food Frequency Questionnaire - (FFQ)-cabbage coleslaw indicator	Average total amount of cabbage or coleslaw the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1726-C06448	C06448	Spasticity spasm treat last four week indicator	Indicator of whether the person with SCI has received any kind of treatment for spasticity/spasms within the last four weeks	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1790-C06464	C06464	Non traumatic spinal cord injury etiology axis 1 level 3 category	The category of level 3 of axis 1 to classify the cause of non-traumatic spinal cord injury	Exploratory	History of Injury	False	Spinal Cord Injury	Spinal Cord Injury
F2119-C11908	C11908	Modified Ashworth Scale for Grading Spasticity muscle score	Measurement of muscle spasticity	Exploratory	Modified Ashworth Scale for Grading Spasticity (Pediatric CDEs)	True	Spinal Cord Injury	Spinal Cord Injury
F1725-C19177	C19177	Pre spinal cord lesion pulmonary conditions present type	Types of pulmonary conditions present before spinal cord lesion	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2082-C19399	C19399	Brain Motor Control Assessment (BMCA) - Upper limb relaxation episodic event count	Number of events in episodic assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09787	C09787	Food Frequency Questionnaire - (FFQ)-white bread indicator	Average total amount of white bread, including pita bread the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09747	C09747	Food Frequency Questionnaire - (FFQ)-beans lentil indicator	Average total amount of beans or lentils, baked, dried or in soup the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1726-C19185	C19185	Urinary tract drug use other text	The free-text field related to 'Urinary tract drug use indicator' specifying other text. Indicator for urinary tract drugs used within the last year	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F2120-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs)	True	Spinal Cord Injury	Spinal Cord Injury
F1737-C00004	C00004	Birth country ISO code	Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born	Exploratory	Demographics	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19206	C19206	Congenital deformity surgery caused description	Description of surgery caused by pre-existing congenital deformities of spine and spinal cord	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2082-C19408	C19408	Brain Motor Control Assessment (BMCA) - Muscle count	Number of muscles examined as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F1718-C01703	C01703	Lab panel category	Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Exploratory	Laboratory Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09795	C09795	Food Frequency Questionnaire - (FFQ)-tortillas indicator	Average total amount of tortillas the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F2075-C09755	C09755	Food Frequency Questionnaire - (FFQ)-Romaine leaf lettuce indicator	Average total amount of romaine or lead lettuce the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury
F1726-C22779	C22779	Vasopressor use date	Date (and time, if applicable) when the vasopressor was administered	Exploratory	Prior and Concomitant Medications	False	Spinal Cord Injury	Spinal Cord Injury
F1725-C19214	C19214	Pre-existing systemic neuro-degenerative disorder specify anatomic site	Specifies anatomic site of pre-existing systemic neuro-degenerative disorder	Exploratory	Medical History	False	Spinal Cord Injury	Spinal Cord Injury
F2082-C19425	C19425	Brain Motor Control Assessment (BMCA) - Fast as possible termination time	Time of termination recorded in Fast as Possible assessment as part of the Brain Motor Control Assessment (BMCA)	Exploratory	Brain Motor Control Assessment - (Pediatric CDEs)	False	Spinal Cord Injury	Spinal Cord Injury
F1718-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Exploratory	Laboratory Tests	False	Spinal Cord Injury	Spinal Cord Injury
F2075-C09763	C09763	Food Frequency Questionnaire - (FFQ)-bacon indicator	Average total amount of bacon the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)	Exploratory	Food Frequency Questionnaire (FFQ)	True	Spinal Cord Injury	Spinal Cord Injury

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.