CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 1886
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13206 Generalized Anxiety Disorder (GAD-7) - not stop worry scale

Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) (Pediatric CDEs) True Spinal Cord Injury Spinal Cord Injury
C09776 Food Frequency Questionnaire - (FFQ)-liver beef calf pork indicator

Average total amount of liver: beef, calf or pork the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19401 Brain Motor Control Assessment (BMCA) - Upper limb relaxation long lasting duration

Duration of long-lasting assessment of upper limb relaxation as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09736 Food Frequency Questionnaire - (FFQ)-tofu burgers soybeans other soy protein indicator

Average total amount of tofu, soy burgers, soybeans, miso, or other soy protein the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C06195 Constipating agent fecal incontinence drug last four week indicator

Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C06461 Non traumatic spinal cord injury etiology classification axis 1 level 2 category

The category of level 2 of axis 1 to classify the cause of non-traumatic spinal cord injury

 Exploratory History of Injury False Spinal Cord Injury Spinal Cord Injury
C19171 Cardiac pacemaker last insertion date

Date at which cardiac pacemaker was last inserted

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C09784 Food Frequency Questionnaire - (FFQ)-cooked oatmeal oat bran indicator

Average total amount of cooked oatmeal/cooked oat bran the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19415 Brain Motor Control Assessment (BMCA) - Muscle movement type

Type of muscle movement being evaluated as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09744 Food Frequency Questionnaire - (FFQ)-corn indicator

Average total amount of corn the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19182 Steroid administration date

Date at which steroids (methylprednisone/corticosteroids) were administered during stay

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19203 Pre-existing congenital deformity specify diagnosis name

Specifies name of pre-existing congenital deformity of the spine and spinal cord

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C09792 Food Frequency Questionnaire - (FFQ)-brown rice indicator

Average total amount of brown rice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19429 Brain Motor Control Assessment (BMCA) - Passive stretch type

Type of passive stretch assessed as part of the Brain Motor Control Assessment (BMCA)

 Exploratory Brain Motor Control Assessment - (Pediatric CDEs) False Spinal Cord Injury Spinal Cord Injury
C09752 Food Frequency Questionnaire - (FFQ)-raw spinach indicator

Average total amount of raw spinach the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C19191 Examination day cardiovascular function medication other text

Free-text field for medication affecting cardiovascular function on the day of the examination

 Exploratory Prior and Concomitant Medications False Spinal Cord Injury Spinal Cord Injury
C19211 Degenerative spine disorder surgery caused description

Description of surgery caused by degenerative spine disorder

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
C09839 Food Frequency Questionnaire - (FFQ)-sweet roll coffee cake other pastry home baked indicator

Average total amount of home baked sweet roll, coffee or other pastry the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09674 Food Frequency Questionnaire - (FFQ)-selenium duration

Duration of selenium intake, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C17541 Tardieu Scale assistive device text

Text identifying an assistive device used by the participant/subject for an immovable joint in a limb

 Exploratory Tardieu Scale False Spinal Cord Injury Spinal Cord Injury
C09847 Food Frequency Questionnaire - (FFQ)-other bran added food indicator

Average total amount of other bran (wheat, etc.) the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C09682 Food Frequency Questionnaire - (FFQ)-calcium dolomite daily dose

Dose per day of Calcium or Dolomite, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C08510 36-item Short Form Health Survey (SF-36) - Health limited walking several blocks score

Score of surveyee-reported limited walking several blocks due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Spinal Cord Injury Spinal Cord Injury
C09807 Food Frequency Questionnaire - (FFQ)-punch lemonade sports drinks sugared iced tea indicator

Average total amount of punch, lemonade, sports drinks, or sugared ice tea the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Exploratory Food Frequency Questionnaire (FFQ) True Spinal Cord Injury Spinal Cord Injury
C06359 Osteoporosis diagnosis method type

Method used to diagnosis osteoporosis

 Exploratory Medical History False Spinal Cord Injury Spinal Cord Injury
Displaying 326 - 350 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.