CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12795 Gene coding region sequenced indicator

For missense/nonsense variant or point mutations or pseudoexons, whether the entire coding region was sequenced for the allele of the gene

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12935 Cardiovascular Holter exam ventricular contraction morphology type

Morphology of the ventricular dysrhythmia

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18819 Pregnancy or delivery risk factor other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12855 Cardiac MRI myocardial scar result

Result of evaluation of the cardiac MRI for mycocardial scarring on the selected ventricle

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10777 Electrophysiology study type

Type of electrophysiology study conducted

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17909 Tissue specimen comment other text

Text description of any other comments pertaining to the pathology examination of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12542 Imaging nuclei type

The type as related to nuclei in the scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10685 Imaging slice orientation type

The slice orientation used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12365 Respiratory airway clearance medication concentration value

Value of the concentration of the airway clearance medication used

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12325 Respiratory mechanical in-exsufflator exhale duration

Value of the exhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12231 Laboratory name

Name of laboratory where assessment was performed

Supplemental Fat Aspirate Tissue Specimens Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12737 Needle electromyography interference pattern analysis technique name

The interference pattern technique used for analysis measure during needle electromyography

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12804 Gene cDNA variant or mutation name

The Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17957 Cardiovascular Holter exam premature ventricular contraction number

Number or premature ventricular contractions per 24 hours

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's/subject's medical history

Supplemental Medical History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17929 Cardiac MRI overall impression text

Text description of the overall impression of the cardiac MRI being reported

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17943 Spectroscopy geometry matrix in-plane size value

Value of the in-plane matrix size, if applicable for the spectroscopy scan being reported

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12539 Imaging fluid attenuated inversion recovery sequence indicator

Indicator of whether FLAIR (fluid attenuated inversion recovery) sequence was used to remove the effects of fluid from the resulting images

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12374 Respiratory support positive pressure device delivery method type

Type of non-invasive, positive pressure delivery method supported by the device

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01553 Blood pressure measurement position type

Indicator of the participant/subject's position during the blood pressure measurement

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12333 Respiratory manual percussion use daily frequency

Frequency of use of manual percussion therapy on a daily basis

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12745 Electrophysiology neuromuscular jitter study blocking count

Count of pairs/endplates with blocking recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 151 - 175 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.