CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18846 Respiratory other airway clearance method use other text

The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12455 Polysomnography transcutaneous carbon dioxide measurement grade

Grade of the transcutaneous CO2 (TcCO2) measurements being reported

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10678 Employment full-time status

Status of participant/subject's current full-time employment

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

 Supplemental Family History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12898 Echocardiogram left ventricle end diastolic volume index measurement

Measurement calculated from end diastolic volume over body surface area for the left ventricle obtained by echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12218 Gastrointestinal therapy formula name

Name of the formula taken by the participant/subject for non-continuous feeding

 Supplemental Gastrointestinal Therapies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12496 Imaging cerebellum normality status

Status related to whether the cerebellum appears normal or abnormal in the imaging study

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12752 Electrophysiology heart rate variability value

The heart rate variability with deep breathing measured during autonomic function testing

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18715 Imaging radio frequency coil other text

The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12463 Polysomnography heart rate REM sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during rapid eye movement (REM) sleep

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12256 Biopsy and autopsy eccentric nuclei estimated fibers percent value

Estimated percent of fibers in eccentric nuclei

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12633 Spinal muscular atrophy symptom indicator

Indicator whether the participant/subject exhibits the selected spinal muscular atrophy (SMA) symptom or sign

 Supplemental Medical History of SMA - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10566 Imaging radio frequency coil name

Name of the radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12906 Echocardiogram left ventricle non-compaction status

Status of non-compaction in the left ventricle on the echocardiogram

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12241 Biochemical or genetic test name

Name of the biochemical or genetic test as performed on the specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12534 Gastrointestinal therapy formula grade

Grade, in cal/oz, of formula taken by the participant/subject if receiving continuous feeding

 Supplemental Gastrointestinal Therapies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12504 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site

Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12760 Electrophysiology quantitative sweat function proximal leg measurement

The amount of sweat collected on the proximal leg

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 201 - 225 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.