CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12401 Respiratory oxygen flow rate

The flow rate value of supplemental oxygen

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12465 Polysomnography heart rate awake value

Value, in beats per minute, of the selected heart rate (HR) measurement during wakefulness

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12768 Electrophysiology short post-exercise compound muscle action potential measurement

The compound muscle action potential (CMAP) values measured at the post-exercise intervals

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12184 Dual X-ray absorptiometry proximal femur T score

Dual X-ray absorptiometry (DEXA) proximal femur T score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12863 Echocardiogram left atrium view type

The view from the left atrium on the echocardiogram

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12425 Polysomnography study date

Date on which the polysomnography (sleep study) being reported was performed

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12469 Imaging magnetic resonance imaging session number

Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10683 Imaging T2 weighted spin-echo acquired indicator

Indicator as to whether or not T2-weighted spin-echo data acquired for spatially registering DWI data and performing spatial distortion (B0) correction

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17889 Gene missense nonsense variant or point mutation location exon text

Text about missense/nonsense variant or point mutation at the exon

 Supplemental Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17411 Gestational age weeks delivery duration

Duration of gestation (gestational age or GA) at the time of the participant/subject's delivery

 Supplemental NINDS Repository Spinal Muscular Atrophy Data Elements False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17883 Gastrointestinal therapy water flush status

The status of whether water was used to flush the participant/subject's feeding tube, if applicable

 Supplemental Gastrointestinal Therapies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12530 Biopsy autopsy COX-negative fibers estimated count

COX-negative fibers estimated number

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12680 Hospitalization non-surgical elective indicator

Indicator of whether the enumerated non-surgical hospitalization was elective

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C54234 Echocardiogram right ventricle IVSTd measurement

Right ventricular end - diastolic septal thickness (IVSTd) measured with echocardiography

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18720 Imaging visual analysis location performed type other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18871 Needle electromyography spontaneous activity other text

The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12192 Dual X-ray absorptiometry whole body bone mineral density value

The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12871 Echocardiogram aortic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the aortic valve of the heart

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12433 Polysomnography apnea hypopnea index type REM event count

Count of rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12481 Imaging cortex lissencephaly (LIS type 1) indicator

Indicator of whether cortex lissencephaly is found within the image studies

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18874 Gene variant or mutation category other text

The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene

 Supplemental Mutation Analysis False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17904 Biopsy and autopsy pathological inclusions text

Text describing pathological inclusions (if any)

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 151 - 175 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.