CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12933	Cardiovascular Holter exam ventricular contraction count type	Type of ventricular contraction for which the total number of occurrences is recorded	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12935	Cardiovascular Holter exam ventricular contraction morphology type	Morphology of the ventricular dysrhythmia	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C18882	Cardiovascular Holter exam ventricular dysrhythmia other text	The free-text field related to 'Cardiovascular Holter exam ventricular dysrhythmia type' specifying other text. Type of ventricular dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12930	Cardiovascular Holter exam ventricular dysrhythmia type	Type of ventricular dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C18879	Cardiovascular Holter predominant heart rhythm other text	The free-text field related to 'Cardiovascular Holter predominant heart rhythm type' specifying other text. Heart rhythm the participant/subject exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12917	Cardiovascular Holter predominant heart rhythm type	Heart rhythm the participant/subject exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C17963	Cardiovascular mitral stenosis regurgitation comment text	The text detailing the comments of the degree of stenosis and regurgitation for the mitral valve	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C17962	Cardiovascular tricuspid stenosis regurgitation comment text	The text detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C17956	Cardiovascular ventricular dysrhythmia episode duration	Duration, in seconds, of the ventricular dysrhythmia episode	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C17955	Cardiovascular ventricular dysrhythmia episode total number	Total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12605	Caregiver primary type	Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject	Supplemental	Social Status	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12661	Certainty of response topic type	Topic for the certainty of response (i.e., element the 'certainty of response type' describes)	Supplemental	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12665	Certainty of response type	Certainty of recollection of the response or information	Supplemental	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12658	Clinical event or milestone achieved age value	Age when the participant/subject achieved the clinical event or milestone	Core	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10616	Clinical event or milestone achieved indicator	Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder	Core	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10615	Clinical event or milestone type	Type of clinical event or milestone pertinent to the disease or disorder	Core	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C11139	Country of origin maternal ISO code	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	Supplemental	Demographics	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C10675	Country of origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C11138	Country of origin paternal ISO code	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	Supplemental	Demographics	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C11136	Country of origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C21665	Death cause ICD-10-CM code	ICD-10-CM code that describes the cause of participant/subject's death	Supplemental	Death Report	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C04800	Death cause text	Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate	Supplemental	Death Report	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Death Report	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Supplemental	Death Report	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
C12610	Death location type	Type of location where the participant/subject died	Supplemental	Death Report	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

Displaying 151 - 175 of 1207

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.