CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04512 ECG QTc interval

Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (ECG/EKG) being recorded

Core Electrocardiogram (ECG) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

Exploratory Grip Strength Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

Supplemental Laboratory Tests and Tracking Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12726 Electrophysiology repetitive nerve postactivation amplitude measurement

Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12792 Gene whole deletion indicator

Whether the entire gene was deleted

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12931 Cardiovascular Holter exam premature ventricular contraction percentage value

Value of the percent of premature ventricular contractions the participant experienced during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12629 Neonatal intensive care unit stay duration

Duration of the participant/subject's stay in the neonatal intensive care unit (NICU)

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12851 Cardiac MRI left ventricle noncompaction position anatomic site

Anatomic site or position on the left ventric le of any non-compaction observed by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12295 Laboratory pathology normal range age match indicator

Indicator of whether the pathology laboratory's normal range of intraepidermal nerve fiber density is age-matched to the patient from whom the tissue specimen was taken

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12508 Imaging radio frequency coil function type

The function of the radio frequency (RF) coil used

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12362 Respiratory other airway clearance method session time

Time it takes per session for the participant/subject to use the other airway clearance method

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Supplemental Physical Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12322 Respiratory mechanical in-exsufflator inhale pressure value

Value of the inhale pressure setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12228 Tissue specimen name

Tissue specimen name collected from the participant

Supplemental Fat Aspirate Tissue Specimens Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12734 Needle electromyography motor unit action potential stable indicator

The stability of the action potential measure during needle electromyography

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17954 Cardiovascular Holter exam atrial dysrhythmia episode duration

Duration, in seconds, of the atrial dysrhythmia episode

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12861 Cardiac MRI quality result type

Type of quality result of the cardiac magnetic resonance imaging (MRI) being reported

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10785 Electrophysiology motor unit number estimation value

Value of the motor unit number estimate (MUNE), derived by dividing compound muscle action potential (CMAP) amplitude by single motor unit potential (SMUP) amplitude

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 126 - 150 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.