CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12317 Pulmonary function forced vital capacity early termination indicator

Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

 Exploratory Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12524 Inflammation severity status

Severity of Inflammation muscle diagnostic abnormalities

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

 Supplemental Death Report False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12239 Electron microscopy performed indicator

Indicator of whether electron microscopy was performed

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12358 Respiratory intrapulmonary percussive ventilation cup liquid type

Type of liquid in the intrapulmonary percussive ventilation cup

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12943 Orthosis type

Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

 Supplemental External Devices - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12237 Specimen overall interpretation status

Status of the overall assessment of the specimen

 Supplemental Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17921 Dual X-ray absorptiometry current corticosteroid use indicator

Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12892 Echocardiogram left ventricle wall motion abnormal indicator

Indicator of wall motion abnormalities in the left ventricle on the echocardiogram

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12490 Imaging ventricle normality status

Status related to whether the ventricles appear normal or abnormal in the imaging study

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18657 Imaging diffusion sixth b value

Value, in square millimeters per second, of the sixth b-value used in diffusion acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12366 Respiratory airway clearance medication dose value

Value of the dose of the airway clearance medication used

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

 Supplemental Family History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12900 Echocardiogram left ventricle end systolic volume measurement

Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12498 Imaging T2 white matter status

Status related to whether the white matter appears normal or abnormal on T2 weighted images

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 126 - 150 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.