CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1051 - 1075 of 1146

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1039-C12222	C12222	Gastrointestinal therapy other oral intake text	Text of other nutriment taken orally, if any	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12499	C12499	Imaging T2 weighted white matter abnormality site type	The type of anatomical site of the white matter abnormality on T2 weighted images	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12755	C12755	Electrophysiology Valsalva ratio	The Valsalva ratio measured during autonomic function testing	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C18719	C18719	Imaging slice orientation type other text	The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C10732	C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1038-C12407	C12407	Pulmonary gas exchange assessment date	The assessment date of the gas exchange measurement	Supplemental	Measures of Gas Exchange	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12259	C12259	Biopsy and autopsy inflammation type	Perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1073-C12636	C12636	Spinal muscular atrophy symptom hip dislocate side indicator	Indicator of the side of the body on which the participant/subject has a dislocated hip	Supplemental	Medical History of SMA - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12909	C12909	Echocardiogram right ventricular systolic pressure measurement	Measurement of right ventricular systolic pressure estimate obtained by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C17884	C17884	Gastrointestinal therapy continuous feed start time value	The value for the time of day that the participant/subject's continuous feeding is normally begun	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C14964	C14964	Sedation used indicator	Indicator of whether the participant was administered any sedation	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12763	C12763	Electrophysiology tilt study heart rate change result	Heart rate changes experienced from a tilt test	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12179	C12179	Dual X-ray absorptiometry hip Z score	Dual X-ray absorptiometry (DEXA) Hip Z score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C10745	C10745	Echocardiogram early mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) obtained by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1038-C12415	C12415	Pulmonary blood gas partial pressure carbon dioxide value	The numeric value of the blood gas partial pressure of carbon dioxide (PCO2) in the blood	Supplemental	Measures of Gas Exchange	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C10927	C10927	Imaging inversion time duration	Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C10592	C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12398	C12398	Respiratory support schedule daily hour value	Value of the number of hours of daily ventilation device use	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12267	C12267	Biopsy and autopsy liver biopsy autopsy results	The results of the liver biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1075-C10609	C10609	Hospitalization reason	Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Surgical and Hospitalization History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C17963	C17963	Cardiovascular mitral valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1984-C17906	C17906	Specimen immunohistochemical stain use indicator	Indicator whether immunohistochemcial stains were used on the tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1998-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12730	C12730	Needle electromyography motor unit action potential amplitude measurement	The amplitude value of the motor unit action potential (MUAP) measure during needle electromyography	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

Displaying 1051 - 1075 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.