CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1071-C12686	C12686	Orthosis type use indicator	Indicator whether the participant/subject currently uses the selected types of orthosis	Supplemental	External Devices - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C10682	C10682	Imaging anatomic site	Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12426	C12426	Polysomnography study type	Type of polysomnography (sleep study) that is being reported	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12402	C12402	Respiratory oxygen use frequency	Frequency of use of supplemental oxygen	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C18878	C18878	Echocardiogram result other text	The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12191	C12191	Dual X-ray absorptiometry whole body bone mineral content value	The amount of bone mineral content (BMC) for dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12870	C12870	Echocardiogram pulmonic valve stenosis degree status	Status of the degree of pulmonic valve stenosis as assessed by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1998-C01713	C01713	Lab test result unit of measure UCUM code	Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen	Supplemental	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12198	C12198	Gastrointestinal therapy received indicator	Indicator of whether the participant/subject is currently receiving any gastrointestinal (GI) therapies	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12479	C12479	Imaging cortex-pachygyria site type	The anatomical site(s) of the cortex-pachygyria	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1072-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C15572	C15572	Imaging diffusion direction count	Count of diffusion directions in the associated diffusion imaging study	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12434	C12434	Polysomnography apnea hypopnea index type non-REM event count	Count of non-rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12792	C12792	Gene whole deletion indicator	Whether the entire gene was deleted	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C18837	C18837	Respiratory manual cough assist use other text	The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12750	C12750	Electrophysiology motor unit number estimation surface motor unit action potential average count	Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1059-C17954	C17954	Cardiovascular Holter exam atrial dysrhythmia episode duration	Duration, in seconds, of the atrial dysrhythmia episode	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1056-C12861	C12861	Cardiac MRI quality result type	Type of quality result of the cardiac magnetic resonance imaging (MRI) being reported	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C17939	C17939	Scanner manufacturer other name	Name of the tissue scanner (e.g. Magnetic Resonance Imaging or Computerized Tomography) manufacturer if not one of the listed possibilities	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12272	C12272	Western Blot result	Result of the assay(s) performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C12536	C12536	Imaging dimension type	Type of imaging dimension used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12709	C12709	Electrophysiology blink reflex test electrode type	Type of electrode used for the blink reflex test	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12370	C12370	Respiratory support device type	Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.