CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 401 - 425 of 1146
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12192 Dual X-ray absorptiometry whole body bone mineral density value

The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12199 Gastrointestinal therapy feed method type

Type of method by which the participant/subject receives therapeutic feedings

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

Supplemental Laboratory Tests and Tracking Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18838 Respiratory manual percussion use other text

The free-text field related to 'Respiratory manual percussion use frequency' specifying other text. Frequency of use of manual percussion therapy

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12726 Electrophysiology repetitive nerve postactivation amplitude measurement

Measurement, in mV, of the amplitude of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12792 Gene whole deletion indicator

Whether the entire gene was deleted

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12931 Cardiovascular Holter exam premature ventricular contraction percentage value

Value of the percent of premature ventricular contractions the participant experienced during the Holter examination

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12629 Neonatal intensive care unit stay duration

Duration of the participant/subject's stay in the neonatal intensive care unit (NICU)

Supplemental Prenatal and Perinatal History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12508 Imaging radio frequency coil function type

The function of the radio frequency (RF) coil used

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12514 Dual X-ray absorptiometry distal forearm T score

The T score for the dual X-ray absorptiometry (DEXA) of the distal forearm

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12208 Gastrointestinal therapy nutrition supplement type

Type(s) of nutritional supplement(s) being taken by the participant/subject

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12228 Tissue specimen name

Tissue specimen name collected from the participant

Supplemental Fat Aspirate Tissue Specimens Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18846 Respiratory other airway clearance method use other text

The free-text field related to 'Respiratory other airway clearance method use frequency' specifying other text. Frequency of use of other airway clearance methods

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12734 Needle electromyography motor unit action potential stable indicator

The stability of the action potential measure during needle electromyography

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12801 Gene point mutation nonsense variant codon type

Type of nonsense variant or point mutation

Supplemental Mutation Analysis Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17954 Cardiovascular Holter exam atrial dysrhythmia episode duration

Duration, in seconds, of the atrial dysrhythmia episode

Supplemental Holter Examination Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10785 Electrophysiology motor unit number estimation value

Value of the motor unit number estimate (MUNE), derived by dividing compound muscle action potential (CMAP) amplitude by single motor unit potential (SMUP) amplitude

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17939 Scanner manufacturer other name

Name of the tissue scanner (e.g. Magnetic Resonance Imaging or Computerized Tomography) manufacturer if not one of the listed possibilities

Supplemental Magnetic Resonance Spectroscopy (MRS) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12218 Gastrointestinal therapy formula name

Name of the formula taken by the participant/subject for non-continuous feeding

Supplemental Gastrointestinal Therapies Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18715 Imaging radio frequency coil other text

The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

Supplemental Measures of Gas Exchange Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 401 - 425 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.