CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1059-C12935	C12935	Cardiovascular Holter exam ventricular contraction morphology type	Type of morphology of the ventricular contraction	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C18720	C18720	Imaging visual analysis location performed type other text	The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12531	C12531	Biopsy autopsy excessive glycogen severity result	Severe glycogen storage pathology involves excess PAS+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild glycogen storage pathology is difficult to determine at the light microscopic level and may only be evident on PAS stain or electron microscopy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12193	C12193	Dual X-ray absorptiometry appendicular lean soft tissue value	The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C10777	C10777	Electrophysiology study type	Type of electrophysiology study conducted	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C12511	C12511	Imaging post-processing raw data save indicator	Indicator of whether raw data was saved in post processing	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C12481	C12481	Imaging cortex lissencephaly (LIS type 1) indicator	Indicator of whether cortex lissencephaly is found within the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C17794	C17794	Imaging diffusion second b value	Value, in square millimeters per second, of the second b-value used in diffusion acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C18875	C18875	Gene targeted variant mutational analysis other text	The free-text field related to 'Gene targeted variant or mutational analysis type', specifying other text. Type of targeted variant or mutational analysis performed for the gene	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12737	C12737	Needle electromyography interference pattern analysis technique name	The interference pattern technique used for analysis measure during needle electromyography	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12384	C12384	Respiratory tracheostomy tube length measurement	Measurement of the length of the tracheostomy tube	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12342	C12342	Respiratory lung volume recruitment inhale pressure value	Value of the inhale pressure setting for the lung volume recruitment device	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C12204	C12204	Gastrointestinal therapy fundoplication age value	Value of the participant/subject's age at which s/he had fundoplication surgery	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12259	C12259	Biopsy and autopsy inflammation type	Perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C12669	C12669	Height or length measurement type	Type of height or length measurement taken	Supplemental	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1073-C12636	C12636	Spinal muscular atrophy symptom hip dislocate side indicator	Indicator of the side of the body on which the participant/subject has a dislocated hip	Supplemental	Medical History of SMA - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C18842	C18842	Respiratory high frequency chest wall oscillation system use other text	The free-text field related to 'Respiratory high frequency chest wall oscillation system use frequency' specifying other text. Frequency of use of the high frequency chest wall oscillation system	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C08023	C08023	Imaging abnormal finding text	Text description of the abnormal findings on the imaging study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1036-C12447	C12447	Polysomnography blood oxygen saturation drop hour awake count	Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during time awake	Supplemental	Polysomnography	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12893	C12893	Echocardiogram right ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the right ventricle on the echocardiogram	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12763	C12763	Electrophysiology tilt study heart rate change result	Heart rate changes experienced from a tilt test	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C18696	C18696	Imaging dimension other text	The free-text field related to 'Imaging dimension type' specifying other text. Type of imaging dimension used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1032-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Supplemental	Social Status	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12392	C12392	Respiratory inspiratory positive airway pressure positive inspiratory pressure value	Value of the inspiratory positive airway pressure or positive inspiratory pressure	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.