CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C12705	C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C17898	C17898	Laboratory director unknown indicator	Indicator of unknown laboratory director	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C17952	C17952	Spectroscopy sequence parameter echo time duration	Duration, in ms, of the echo time (TE) as a spectroscopic sequence parameter in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1092-C12660	C12660	Milestone currently able indicator	Whether the participant/subject is currently able to complete or perform the milestone	Core	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12384	C12384	Respiratory tracheostomy tube length measurement	Measurement of the length of the tracheostomy tube	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12226	C12226	Specimen source type	Type of specimen collection source	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12342	C12342	Respiratory lung volume recruitment inhale pressure value	Value of the inhale pressure setting for the lung volume recruitment device	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1998-C01700	C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Supplemental	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12714	C12714	Electrophysiology blink reflex test contralateral R2 latency value	Duration of contralateral R2 latency in the blink reflex test	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Core	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C10586	C10586	Imaging bandwidth value	Value, in Hertz per pixel, of bandwidth used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C11078	C11078	Delivery mode type	Type of delivery mode of the neonate	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C12830	C12830	ECG conduction block status	Status of a conduction block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12392	C12392	Respiratory inspiratory positive airway pressure positive inspiratory pressure value	Value of the inspiratory positive airway pressure or positive inspiratory pressure	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C10948	C10948	Imaging field of view axis 3 measurement	Axis 3 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12350	C12350	Respiratory high frequency chest wall oscillation system use daily frequency	Frequency with which the participant/subject uses the high frequency chest wall oscillation system device on a daily basis	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1998-C01708	C01708	Lab test performed indicator	Indicator of whether the lab test has been performed on the participant/subject	Supplemental	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C12301	C12301	Pulmonary Function Test seat position type	The seated position of the participant/subject during the assessment	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12722	C12722	Electrophysiology repetitive nerve high frequency	Value, in Hz, of the specific frequency used for the high frequency stimulation activation technique, if applicable, in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C12617	C12617	Pregnant prior history medical terminate count	Count of prior medical terminations (abortions) that the participant/subject's mother has had	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12291	C12291	Tissue specimen counting threshold type	Type of threshold for counting in the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C10965	C10965	Spectroscopy post process residual water signal remove indicator	Indicator whether residual water signal was removed in post processing	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C10591	C10591	Imaging phase encode direction text	Text description of the phase encode direction used in imaging technique acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.