CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1042-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12245	C12245	Symptom presentation type	Symptoms participant/ subject shows at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12897	C12897	Echocardiogram right ventricle end diastolic volume measurement	Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1054-C12175	C12175	Dual X-ray absorptiometry performed date	Date the dual X-ray absorptiometry (DXA) was performed	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C10741	C10741	Echocardiogram aortic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C10576	C10576	Imaging in plane resolution axis 1 measurement	Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12913	C12913	Echocardiogram study quality type	Type of quality of the echocardiogram study	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12870	C12870	Echocardiogram pulmonic valve stenosis degree status	Status of the degree of pulmonic valve stenosis as assessed by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12889	C12889	Echocardiogram right ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C04512	C04512	ECG QTc interval	Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (ECG/EKG) being recorded	Core	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Core	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C10729	C10729	Echocardiogram left atrial antero - posterior dimension measurement	Measurement of the left atrial antero-posterior dimension obtained by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C10576	C10576	Imaging in plane resolution axis 1 measurement	Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1056-C12843	C12843	Cardiac MRI ventricle end systolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1059-C12931	C12931	Cardiovascular Holter exam premature ventricular contraction percentage value	Value of the percent of premature ventricular contractions the participant experienced during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1056-C12851	C12851	Cardiac MRI left ventricle noncompaction position anatomic site	Anatomic site or position on the left ventric le of any non-compaction observed by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F2011-C12228	C12228	Tissue specimen name	Tissue specimen name collected from the participant	Supplemental	Fat Aspirate Tissue Specimens	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1996-C12818	C12818	Gene second allele identical indicator	Indicator of whether allele #2 is identical to allele #1	Supplemental	Mutation Analysis	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1059-C18880	C18880	Cardiovascular Holter exam atrial dysrhythmia type other text	The free-text field related to 'Cardiovascular Holter exam atrial dysrhythmia type', specifying other text. Type of atrial dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1061-C04513	C04513	ECG ST segment abnormality status	Status of an abnormal interval between the end of the QRS complex and the beginning of the T wave (ST segment) on the electrocardiogram (ECG/EKG) being reported	Core	Electrocardiogram (ECG)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12898	C12898	Echocardiogram left ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the left ventricle obtained by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C12906	C12906	Echocardiogram left ventricle non-compaction status	Status of non-compaction in the left ventricle on the echocardiogram	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C10742	C10742	Echocardiogram mitral valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.