CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1058-C10958	C10958	Spectroscopy spectral points count	Count of the spectroscopic sequence parameter of spectral points used in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C10584	C10584	Imaging phase resolution percentage value	The value in percent of the phase resolution used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12353	C12353	Respiratory intrapulmonary percussive ventilation or MetaNeb type	Type of intrapulmonary percussive ventilation or MetaNeb device used	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1039-C17887	C17887	Gastrointestinal therapy continuous feed end time value	The value for the time of day that the participant/subject's continuous feeding is normally ended	Supplemental	Gastrointestinal Therapies	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1998-C01711	C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Core	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C12305	C12305	Pulmonary function test equipment software program name	The software program used in the pulmonary function test equipment	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12725	C12725	Electrophysiology repetitive nerve postactivation number	The numeric value given to the amplitude and area values recorded for postactivation during the repetitive nerve stimulation study	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1059-C12930	C12930	Cardiovascular Holter exam ventricular dysrhythmia type	Type of ventricular dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C12628	C12628	Neonatal intensive care unit stay indicator	Indicator whether the participant/subject had to stay in the neonatal intensive care unit (NICU)	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C12294	C12294	Laboratory pathology normal range	Range of intraepidermal nerve fiber density that is considered normal at the pathology laboratory examining the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C12165	C12165	Imaging water suppression sequence differences result text	Text description of any differences in sequence parameters between water reference data and water suppression data	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C10594	C10594	Imaging parallel acquisition used indicator	Indicator of whether a parallel acquisition method is used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12361	C12361	Respiratory other airway clearance method use daily freq	Frequency of use of other airway clearance method on a daily basis	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1040-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F2012-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Core	Grip Strength	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12321	C12321	Respiratory mechanical in-exsufflator device use daily frequency	Frequency of daily use of the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F2011-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Fat Aspirate Tissue Specimens	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C12314	C12314	Pulmonary function forced vital capacity cough exhalation indicator	Whether or not the participant coughed during the first second of exhalation in any trial for forced vital capacity (FVC)	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12733	C12733	Needle electromyography motor unit action potential complexity percent value	The complexity of the motor unit action potential measured during needle electromyography	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1096-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C10783	C10783	Electrophysiology motor unit number estimation compound muscle action potential measurement	Measurement in millivolts (mV) of the compound muscle action potential (CMAP) amplitude for the muscle on which MUNE (motor unit number estimation) is performed	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1051-C18832	C18832	Tissue specimen section quantify volume normalize other text	The free-text field related to 'Tissue specimen section quantify volume normalize type' specifying other text. Type of method used to normalize the volume of the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1058-C17937	C17937	Spectroscopy geometry location indicator	Indicator related to anatomical site of voxel or slice of the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C12509	C12509	Imaging radio frequency coil category	Type of radio frequency (RF) coil(s) category used for the body part scanned	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1037-C12369	C12369	Respiratory airway clearance medication frequency	Value of the frequency the participant/subject uses the airway clearance medication	Supplemental	Respiratory Interventions	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.