CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 451 - 475 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12669 Height or length measurement type

Type of height or length measurement taken

Supplemental Vital Signs Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12272 Western Blot result

Result of the assay(s) performed

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12340 Respiratory lung volume recruitment daily frequency

Frequency of daily use of the lung volume recruitment

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12680 Hospitalization non-surgical elective indicator

Indicator of whether the enumerated non-surgical hospitalization was elective

Supplemental Surgical and Hospitalization History - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18871 Needle electromyography spontaneous activity other text

The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12192 Dual X-ray absorptiometry whole body bone mineral density value

The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12480 Imaging cortex-pachygyria thickness measurement

The measurement of cortex thickness, in , of the cortex

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17793 Imaging diffusion fourth b value

Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

Supplemental Diffusion Tensor Imaging (DTI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12390 Respiratory ventilation mode synchronized intermittent mandatory ventilation pressure support type

Type of synchronized intermittent mandatory ventilation (SIMV) with pressure support ventilation used

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12520 Specimen type 1 fiber muscle biopsy percent result number

Result for type 1 fiber muscle biopsy percent

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12348 Respiratory high frequency chest wall oscillation system vest type

Type of vest used

Supplemental Respiratory Interventions Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Core Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18859 Imaging cerebellum abnormality other text

The free-text field related to 'Imaging cerebellum abnormality type' specifying other text. The type of abnormality in the cerebellum on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12687 Orthosis ankle foot orthosis type

Type of any ankle-foot orthosis (AFO) currently used by the participant/subject

Supplemental External Devices - SMA Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12461 Polysomnography heart rate measurement grade

Grade of the heart rate (HR) measurements being reported

Supplemental Polysomnography Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

Supplemental Measures of Gas Exchange Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18834 Ulna length measure tool other text

The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length

Core Pulmonary Function Testing Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

Supplemental Social Status Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12743 Electrophysiology neuromuscular jitter mean consecutive difference average value

Value, in microseconds, for the average of mean consecutive differences (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Supplemental NINDS Repository Spinal Muscular Atrophy Data Elements Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12702 Electrophysiology sensory nerve impulse direction type

The impulse direction put on the nerve during the sensory nerve conduction study

Supplemental Electrophysiology Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12529 Biopsy and autopsy ragged red fibers estimated count

Ragged red fibers estimated number

Supplemental Muscle Biopsy and Autopsy Tissue Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 451 - 475 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.