CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 426 - 450 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10616 Clinical event or milestone achieved indicator

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

 Core Motor Milestones and Current Level of Function - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C11080 Delivery modality type

Type of modality of the participant/subject's intrauterine orientation at delivery

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12448 Polysomnography end tidal carbon dioxide measured indicator

Indicator of whether end-Tidal CO2 (ETCO2) was measured in the polysomnography being reported

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00204 Employment current status

Status of participant/subject's current employment

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12217 Gastrointestinal therapy continuous feed formula rate

Rate, in mL/hr, at which the participant/subject receives formula if receiving continuous feeding

 Supplemental Gastrointestinal Therapies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12750 Electrophysiology motor unit number estimation surface motor unit action potential average count

Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01710 Pregnancy test qualitative result value

Result of the pregnancy test

 Core Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12304 Pulmonary function test equipment model name

Name of model of the pulmonary function test equipment

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12627 Respiratory intervention neonatal oxygen required indicator

Whether oxygen was needed during the neonatal period (i.e., first 28 days of life)

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12456 Polysomnography transcutaneous carbon dioxide total sleep value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during total sleep

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12632 Spinal muscular atrophy symptom type

Type of all spinal muscular atrophy (SMA) symptoms or signs exhibited by the participant/subject

 Supplemental Medical History of SMA - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12602 Discharge post acute location

Location, post-acute discharge, at which participant/subject is currently staying

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12533 Gastrointestinal therapy daily feed value

Number of times per day that the participant/subject receives feedings

 Supplemental Gastrointestinal Therapies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12759 Electrophysiology quantitative sweat function forearm measurement

The amount of sweat collected on the forearm

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12411 Pulmonary gas exchange oxygen saturation value

The value of the oxygen saturation (SpO2) check

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12226 Specimen source type

Type of specimen collection source

 Core Fat Aspirate Tissue Specimens False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12313 Pulmonary function maximal pressure trial difference indicator

Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water

 Core Pulmonary Function Testing False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C21620 Gestational age value range

Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12464 Polysomnography heart rate non-REM sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during non-rapid eye movement (REM) sleep

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05108 Surgical or therapeutic procedure type

Type of surgical or therapeutic procedure received by the participant/subject

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18861 Health insurance private group other text

The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17931 Imaging magnetic resonance imaging performed indicator

Indicator as to whether or not Magnetic Resonance Imaging (MRI) on the brain has been performed on the participant/subject

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 426 - 450 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.