CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12425 Polysomnography study date

Date on which the polysomnography (sleep study) being reported was performed

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12487 Imaging other cortical abnormality site type

The anatomical site(s) of the other cortical abnormality

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12409 Pulmonary gas exchange measurement type

The type of gas exchange measurement used on participant/subject

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10616 Clinical event or milestone achieved indicator

Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder

 Core Motor Milestones and Current Level of Function - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Supplemental Grip Strength False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12231 Laboratory name

Name of laboratory where assessment was performed

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12433 Polysomnography apnea hypopnea index type REM event count

Count of rapid eye movement (REM) sleep events recorded for the type of Apnea-Hypopnea Index (AHI) being reported

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12750 Electrophysiology motor unit number estimation surface motor unit action potential average count

Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12417 Pulmonary blood gas bicarbonate value

The numeric value of the bicarbonate (HCO3) level in the blood

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12255 Biopsy and autopsy central nuclei estimated fibers percent value

Estimated percent of fibers in central nuclei

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12632 Spinal muscular atrophy symptom type

Type of all spinal muscular atrophy (SMA) symptoms or signs exhibited by the participant/subject

 Supplemental Medical History of SMA - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12240 Biochemical or genetic test performed indicator

Indicator of whether subsequent biochemical or genetic testing was performed

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12441 Polysomnography percent sleep time REM percent blood oxygen saturation value

Value representing the amount of rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12759 Electrophysiology quantitative sweat function forearm measurement

The amount of sweat collected on the forearm

 Supplemental Electrophysiology False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

 Supplemental Measures of Gas Exchange False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C18835 Respiratory device other text

The free-text field related to 'Respiratory device type' specifying other text. Type of airway clearance or secretion mobilization device(s) used by the participant/subject

 Supplemental Respiratory Interventions False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12263 Biopsy and autopsy abnormal storage material type

Excesses of material can be detected in some lipid and glycogen storage diseases, which may be evident on Oil Red O and PAS stains, respectively

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05108 Surgical or therapeutic procedure type

Type of surgical or therapeutic procedure received by the participant/subject

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12281 Tissue abnormality myelin axon decrease status

Status of any observed decrease in the myelinated axon numbers of the epon-embedded tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12449 Polysomnography end tidal carbon dioxide measurement grade

Grade of the end-tidal CO2 (ETCO2) measurements being reported

 Supplemental Polysomnography False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 376 - 400 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.