CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1146
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Core Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12512 Dual X-ray absorptiometry line number

Indication of the number of each DXA performed for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C17956 Cardiovascular ventricular dysrhythmia episode duration

Duration, in seconds, of the ventricular dysrhythmia episode

 Supplemental Holter Examination False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12861 Cardiac MRI quality result

Result of evaluation of the quality of the cardiac MRI being reported

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C05408 Hospital admission date and time

Date (and time, if applicable and known) the participant/subject was admitted to the hospital

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04515 ECG ventricular arrhythmia type

Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported

 Core Electrocardiogram (ECG) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

 Supplemental Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12680 Hospitalization non-surgical elective indicator

Indicator of whether the enumerated non-surgical hospitalization was elective

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

 Supplemental Laboratory Tests and Tracking False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12687 Orthosis ankle foot orthosis type

Type of any ankle-foot orthosis (AFO) currently used by the participant/subject

 Supplemental External Devices - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12633 Spinal muscular atrophy symptom indicator

Indicator whether the participant/subject exhibits the selected spinal muscular atrophy (SMA) symptom or sign

 Supplemental Medical History of SMA - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

 Core Electrocardiogram (ECG) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C02498 Imaging scanner software version number

Version number of the imaging scanner software

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C10724 Echocardiogram performed date and time

Date (and time, if applicable and known) the echocardiography was performed

 Supplemental Echocardiogram False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12252 Biopsy and autopsy fiber size variation result type

Distribution of the atrophic fibers

 Supplemental Muscle Biopsy and Autopsy Tissue False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

 Supplemental Social Status False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C12631 Deliver condition hypotonia grade

Grade of any hypotonia (floppiness) that was present at or soon after the participant/subject's delivery

 Supplemental Prenatal and Perinatal History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08255 Imaging visual analysis blinded indicator

Indicator of whether the visual analysis was performed blinded to clinical data

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
Displaying 201 - 225 of 1146

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.