CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1998-C01707	C01707	Lab test abnormality significance type	Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject	Core	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1981-C12298	C12298	Pulmonary function test not done reason	Reason the pulmonary function test was attempted but not completed	Core	Pulmonary Function Testing	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C12616	C12616	Pregnant prior history miscarry count	Count of prior miscarriages (spontaneous abortions) that the participant/subject's mother has had	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1055-C10588	C10588	Imaging echo train length measurement	Measurement of the echo train length used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1040-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Examination	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1998-C10896	C10896	Pregnancy test performed indicator	Indicator as to whether or not a pregnancy test was performed on the participant/subject	Core	Laboratory Tests and Tracking	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C18819	C18819	Pregnancy or delivery risk factor other text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying other text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1056-C12855	C12855	Cardiac MRI myocardial scar result	Result of evaluation of the cardiac MRI for mycocardial scarring on the selected ventricle	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1042-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	Vital Signs	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12737	C12737	Needle electromyography interference pattern analysis technique name	The interference pattern technique used for analysis measure during needle electromyography	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1096-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's/subject's medical history	Supplemental	Medical History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1060-C10724	C10724	Echocardiogram performed date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	Echocardiogram	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1424-C17412	C17412	Survival of motor neuron 2 (SMN2) protein copy number count	Count of all copies (copy number) of the gene SMN2 in the participant/subject's genotype	Supplemental	NINDS Repository Spinal Muscular Atrophy Data Elements	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12531	C12531	Biopsy autopsy excessive glycogen severity result	Severe glycogen storage pathology involves excess PAS+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild glycogen storage pathology is difficult to determine at the light microscopic level and may only be evident on PAS stain or electron microscopy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1092-C12659	C12659	Milestone lost age value	Age when the participant/subject lost the ability to achieve or perform the milestone	Core	Motor Milestones and Current Level of Function - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1093-C11067	C11067	Pregnancy or delivery risk factor indicator	Whether the specific risk factor to the participant's/subject's health was experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental	Prenatal and Perinatal History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1056-C12837	C12837	Cardiac MRI ventricle systolic function result	Result of the cardiac MRI evaluation of the selected ventricle's systolic function	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1073-C12636	C12636	Spinal muscular atrophy symptom hip dislocate side indicator	Indicator of the side of the body on which the participant/subject has a dislocated hip	Supplemental	Medical History of SMA - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1062-C12763	C12763	Electrophysiology tilt study heart rate change result	Heart rate changes experienced from a tilt test	Supplemental	Electrophysiology	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1057-C10931	C10931	Imaging quality of images technically satisfactory indicator	Indicator of whether the quality of the images were technically satisfactory	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1053-C10592	C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1987-C12267	C12267	Biopsy and autopsy liver biopsy autopsy results	The results of the liver biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)
F1075-C10609	C10609	Hospitalization reason	Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Surgical and Hospitalization History - SMA	False	Spinal Muscular Atrophy	Spinal Muscular Atrophy (SMA)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.